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CeeCee
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Joined 2 years ago
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Re: Avoiding radiotherapy
Hi @aj456, I had DCIS 5 years ago, then a Lumpectomy with clear margins. I saw the Radiation Doctor who gave me great odds and I had also researched heavily so elected not to have it. My team agreed with me and said they would do the same which was good enough for me. Five years later, cancer is back in exactly the same spot, requiring a Mastectomy, 6 months of Chemo which I’m half way through. I have again spoken to the Radiation Doctor and she has recommended that I don’t need it again. I am speaking to my Oncologist this week about it, I am worried. Good luck with your decision, unfortunately nothing is black and white.259Views1like3CommentsRe: Hair Loss Advice
@Meg1112, I bought a wig from The Beautiful Hair Boutique from Burleigh Heads but she also has a boutique in Sydney so it may be the same as Cindi mentioned. The boutiques are owned by a lady who has suffered hair loss all of her life. I was recommended this boutique from my daughter in law who is a breast cancer nurse and has seen many bad wigs and whenever she saw a good one that she did not recognise as a wig they came from this place. I live in country Victoria but travelled to get my wig. It is real European hair and treated like your own natural hair. I bought it especially for my son’s wedding last month but wear it everywhere. No one has ever picked it for a wig and are very surprised if I tell them. It is very comfortable to wear, I’m very happy with it.161Views4likes0CommentsRe: Struggling through Chemo
Thank you all for the comments above. I am very happy to have completed AC but now have the fear of the unknown again but the majority of people here have said it’s easier to handle with different side effects. Good to know nausea is not a big one as I’m a bit over that. My Oncologist told me that most people don’t make the 12, so we’ll see how we go. Thanks again and good luck to you all.11Views0likes0CommentsRe: Struggling through Chemo
I have a question please. l’ve just finished 4 rounds of AC and will start 12 rounds of Taxel in a few weeks. The staff at the Cancer clinic did not give me anti nausea tablets for when I start Taxel so I’m presuming I don’t need it. Is that correct?30Views0likes0CommentsRe: Need to talk
Hi @priya_09 and @byo_boy. I have been where you both are now and completely empathise with you. Please know that when you get your plan and start it, life does get better. Waiting for the Pet scan results was next level so thinking of you today George and Rebecca. I must say you are an amazing husband George, my husband is amazing too but to get on here and be so involved, you are an inspiration. I have 2 Chemos down (AC), 2 more to go then 12 Weekly Taxols. Lost my hair 2 weeks after the first treatment, day 3,4 and 5 post treatment are like I have a bad flu so lay low on these days but the other days I have felt normal. As we all know everyone will have a different story to tell, hoping you handle it well. There are definitely some positives to this journey like meeting some great people, the amazing support you get along the way and personally my family has become so much closer. Thinking of you, please know that it does get better.8Views2likes0CommentsRe: DCIS
@Frenchbee so sorry for your diagnosis, we all know how you feel but it does get easier as you go along the journey and know what’s ahead. The fear of the unknown is what rises the anxiety levels although you have already had to deal with it with your family, all different when it’s you though. I was diagnosed with DCIS 5 years ago requiring surgical removal, no other treatment. In January this year I was diagnosed with a 4cm lesion in the same spot, picked up by mammogram, I would never have felt it. Mastectomy followed in March, I am currently going through Chemotherapy as cancer had spread to one lymph node. I can honestly say the Mastectomy has been the easiest part of this journey, I was absolutely beside myself prior. There was no pain at all. I chose not to have a reconstruction, I’m happy with a prosthesis. I know that everyone is different. I hope that everything goes well for you, we are all thinking of you.38Views2likes0CommentsRe: Struggling through Chemo
@Coastiejas thanks for that info. I had the Port installed today in the chest, I’ve just read all of the info and still not sure how it’s going to work. I have my 2nd AC Chemo tomorrow so will find out all about it then, they’ve left bits hanging out for this purpose. My surgeon gave me the numbing cream but not sure if I should use it for tomorrow as it’s a bit raw. Guess I’ll find out more. @Katie46 Love your positive energy. Wishing you all the best for your Radiation.9Views0likes0Comments
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Connecting rural, regional & remote areas
We understand that living outside major cities can bring unique challenges when it comes to accessing care, support, and information. From long travel distances to limited local services, these experiences can feel isolating—but you're not alone. This is a space to connect with others who truly understand what it’s like to face breast cancer while living regionally or remotely. Share stories, ask questions, and support one another through the frustrations and the wins - this group is here for you.
