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6 months on Ribociclib
Well it’s been 6 months and the Ribociclib combo seems to be working. I started this Mets journey in Dec 2018 with tumour markers at 114. My latest blood tests were in early June with tumour markers at 42. It’s a nervous week this week with scans, blood tests and Onc visit, so fingers crossed that my results stay positive…
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new bone lesions....help whats next for me
Hi all, I thought I was off this merry go round that is cancer. I've just been diagnosed with METS on 2 ribs(one each side), humeral head, scapula and a also in pelvic bone. I originally thought it was only in the 2 ribs which were discovered via a bone scan and then a follow up MRI. I elected to pay the exhorbitant fee…
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Ribociclib
Second week of Ribo & feeling very Like I can barely keep it together emotionally. Anyone else have similar issues. Been living with bone Mets diagnosis for 7 years and have not felt like this before. Wondering if this could be a side effect. What else do I have to look forward to?
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De Novo Metastatic with new progression - first post
Hi there, I am completely new to the discussion boards (first post) and trying to stay positive. I was wanting to reach out to others who might understand what I am going through. I was diagnosed de novo metastatic on 04/07/2018. Originally it was a single spot to my spine (L2) then a few weeks ago I found out there were…
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Can medication be taken in the evening.
Hi Everyone, I have recently commenced my first three week cycle of Anastrozole and Ribociclib. The fatigue and muscle ache was dreadful from about day 8 to day 13. I was wondering if taking the medication in the evening would make it easier for me during the day time. I asked my Oncologist if it mattered when I took the…
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Recovery from pleurodesis and starting Ribociclib (amongst other things)
Hello Everyone, A bit of background 2013 i was newly diagnosed on my 39th birthday with invasive ductal carcinoma, ER + Her2 negative (Stage 2B, lumpectomy, 2/13 nodes, chemo, rads, tamoxifen) Also left my husband during treatment, for multiple reasons, a good decision. Around my 44th birthday this year in July, 5 years…
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Kisqali on PBS, very few will get it.
I logged in today to share a couple of community services I have been using in my area and was deeply concerned about the tone of conversation coming from disgruntled members surrounding the availability of a new CDK inhibitors Ribociclib (Kisqali) on the PBS. I am dismayed as I do not believe BCNA has mislead anyone. It…
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Kisqali on PBS, very few will get it.
those of us who were waiting to get Ibrance or Kisqali on PBS we will not get either. Only newly the diagnosed who have NOT had an Aromatose drug. ( there would be very few of them ) BCNA failed to include this in their news item. Those who were on a trial or compassionate grounds will get Kisqali on the PBS. Go to the PBS…
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Newly Diagnosed
Hi, I was diagnosed in April with mets in bones. After three different cancer journeys with breast cancer over many years had a bilateral mastectomy 10 years ago. Now what? I am just at the beginning of a new learning curve. Feeling overwhelmed and unsure but will plod on and deal with whatever comes. Life is good and…
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Newspaper article about Ribociclib
I have just read an article in today's Sunday Telegraph in which the BCNA CEO Kristin Pilatti states that "No newly diagnosed woman with metastatic breast cancer will miss out on access to this drug". She is also quoted as saying that "We hope that this scheme will extend to those women in later line treatment who could…
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Ribociclib/ letrozole/ denosumab side effects
Hi all, I ws wondering if anyone else has QT prolongation and low neutrophils and now I have a bad infection in my jaw so my onc has stopped everything except letrozole, I am pretty upset because my tumours had shrunk and my markers were really low, now I have to wait til the dentist fixes my mouth and I'm worried that all…