Her 2 ladies can you offer any desperately needed advice?

Sam09 have you asked a naturopath if they can give you something that is acceptable by your onco to take while on both medications Just a thought ... 
What other options are there for you? 
I am not HER2 but I can sense you panic and also your pain regarding your skin reaction. 
Soldiercrab

Oh @Sam09, that's such an unimaginably horrible decision to be weighing up. I can't offer anything more than my sincere hope that you will be offered a workable solution soon. The suggestions made by @SoldierCrab and @Zoffiel would be good starting points. I had some heart issues on Herceptin (which I know is nothing as bad as the situation you are faced with) but was allowed / encouraged to take a short break while meds etc were worked out and to give my body a short break, so perhaps that might help? Have you spoken to the oncology counsellor on the BCNA helpline: 1800 500 258? They might be able to offer some other suggestions and help you through the decision-making process. Best wishes, Jane xx

Hi there Sam wow what a dilemma you are in for sure. It’s not enough you have to take the meds let alone the awful side effects you are having.  Have you tried any alternative medication? Like perhaps a Naturopath could help ? Or I don’t know but even the medicinal marijuana would be worth a try perhaps (if you. An get it) ? It seems to be effective with lots of different things reportedly. Don’t give up there must be something out there that can help. If you PM me a pic I can ask the skin dr I work with for his advise and see what he says. It can’t hurt.  I’ll help if I can. I know there’s been a few patients I’ve mine  who have tried the hemp cream and products  from the body shop for skin irritations. Let me know. Margie xx 

@Sam09 you mentioned that you have seen a dermatologist but have you seen an immunologist who may have some options help you? I will warn you that immuno-suppressant drugs also have a list of side effects a mile long but faced with this unbearable reaction and the scary risk of not treating your tumours - it could be worth trying.
I hope you are able to find something that works for you xx

Hi Sam
so sorry to hear about your terrible discomfort on these drugs. I think you need to ask a lot of questions and don't stop until you get somewhere. All good advice from the other ladies. You have to be proactive, no one could put up with that level of discomfort, there must be some sort of solution other than stopping treatment. Thinking of you, let us know if you get some advice that helps. xxx

Thank you everyone I really really appreciate you trying to help me. I have seen lots of naturopaths no help unfortunately. Cannabis oil I immediately went on when I was diagnosed and went down that path instead of chemo and unfortunately for me and my great faith it would heal me naturally it then spread rapidly.  It didn't help . The comments about the oncologists are so true I contacted Roche the drugs creater 5 months ago and they were so concerned they emailed my doctor as they wanted to work with  her to try to rectify my issue before it got worse as it is now and even more distressing to me the emails and phone calls went unanswered . It simply was not a priority .I'm afraid. So here I am right now as always afraid of the night to come. I'm so tired I can not function properly and neither can my family who I keep awake and feel bad for not being able to help. I have radically changed my vegetarian diet so much it' horrible to try to eat the blandest food imaginable to try to help but it is just my bodies way of saying not for me. Last night I felt like someone had poured acid on my skin and felt if there had been a bridge next to me HELLO over I would have went ......i have to face facts here no one can help me because it' simply my own personal hell......

Oh Sam, this all sounds horrible.  Am I reading correctly that Roche wanted to help but your onc hasn't jumped on board?  Would it be worth getting another oncologist?   I have answered one of your posts before.  I just had the 12 months of Hercepton and had a similar reaction, but not till the 2nd last dose. (Major itching and like ant bites all bloody night) A dermatologist thought it was  dermatomyositis - so 1st visit just a biopsy and sent off tests.  2nd Visit the biopsy showed just an allergic reaction but he finally asked my history (ie hercepton).  He told me to book another visit in 2 weeks.  Then low and behold his receptionist cancelled this visit.  I should of been quicker and refused.  Oh well.  I just gathered he read up on hercepton.  He did give me some cream Diprosone OV, which I said had worked.  But now I am not 100% sure.  When I got this cream I showered and put nothing else on but the cream!!  It worked.  But as soon as I went back to normal moisturizing it came back.  Cut it short - Probably 3 years since I finished hercepton - still can't use much moisturizer - as in too much or thicker ones - am using Moo Goo wash and shampoo at moment which has been great cause I can get away with no further moisturisers.  Anything that is coating my skin results in the itchies.  Even sweat, if the itch starts getting worse I jump in the shower.  My skin is still very dry and mildy itchy, but it is manageable.  I don't use sunscreens, makeup, perfumes etc anything else. When I put something to heavy on the itch starts around my mouth and you can just feel it racing to my eyes and down my neck from there.  My eyes and mouth get swollen with a lovely purple red rash on my eyelids (hence the dermatomyositis).  The major itchies just seem to be confined to my neck though. (The pseudo ant bites).  I can't even imagine what you are going through, I only had a few months of it and have never cried so much. I hope you find some help. Pam

If you can find the energy, shop for a new oncologist. It may not help your immediate circumstances, but it has to be better than feeling dismissed. You can interview as many as you need to ( yes, there is a cost attached to doing that if they are private) and hopefully you will find one that you can connect with. None of them have crystal balls or magic wands, but a change can be as good as a holiday.

Hello @Sam09,
Sorry to hear of your dilemma, sending you a private message