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arpie's avatar
arpie
Member
4 years ago

Scanxiety - does it ever REALLY go away?

Does Scanxiety ever really disappear?   I think not.

It is 4 years in Nov since my ILC tumours were found, by accident, by my GP - as the rural BreastScreen Bus screens totally missed it ..... TWICE.  Rural breastscreen buses do not have 3D mammograms - only 2D ones - and they are unlikely to pick up Invasive Lobular Cancer (that does not present as a 'lump' ....) and any cancer is almost impossible to 'see' in those with Dense Breast Tissue.  If you don't know what breast tissue type you have, get your Surgeon/Oncologist to tell you - as Breast Screen NSW refuses to do so.

If you are able to pull up a pic of your Mammograms .... you'll actually SEE if you have dense breast tissue, as much of the breast will showing as 'white' (rather than fairly clear) and as cancer also shows up as 'white' ..... the dense breast tissue hides the cancer.

What followed was 2 years of anxiety as I had a recall on my first anniversary scans, which luckily, were benign .... but being rural, things all take longer to happen.  Altho I had my surgery within days of seeing the surgeon (10 days after my diagnosis on Jan 5th was confirmed) it had taken 2 months to get to the diagnosis, with my biopsy being done between Xmas & New Year.  The following year, the biopsy was on Xmas Eve .... so 2 x Christmases/New Years - totally stuffed!!  For this reason, I brought my scan dates a month early to October - so that if anything needed doing (ie biopsy) I wouldn't be in the Xmas Rush!

SO .... I head north today for my annual Mammogram and Ultrasound (luckily, having the resident specialist breast Cancer Radiographer doing both!)  I'll take hubby with me & will probably even take him into the clinic room with me (if allowed) to keep an eye on him as he has mod-severe dementia.  Otherwise, I'd need to arrange someone to sit with him, if I left him at home.

Up til this morning, I hadn't really 'thought' of the scanxiety .... but then it raised it's ugly head again!   grrrr.   

I am not expecting any adverse results - but with this beast, you just never know! 

I see my Rad Onc next week, also up north - my 2nd last visit to her - next year being Year 5 since detection.

Wish me luck!!