Not take any hormone therapy medication…
I’ve just had a six week medication holiday as suggested by my oncologist as Anastrozole wasn’t agreeing with me; it was affecting my mood and mobility. I often felt stiff and achy and lots of other t...
Forum Discussion
Hi,
after speaking with now quite a few women who have been taking these drugs, I have decided not to. this is because 2 out of 5 had cell changes in their uteruses and all of them had no sex life. ( 2 having uterus removed)
I have had invasive lobular carcinoma grade 3 ( due to the length of one of the cell chains.)
I had 2 surgeries, 1 being a mastectomy, the second a redo as they found a cell chain, growing into my body, now 6 weeks of radiation, which was taken too far and there was discussion that I may lost the integrity of the reconstructed breast as I was absolutely BBQéd. Tomorrow is 5 months of this, and apart from the sugeries I have been working.
I have been off the radiation for a week, and I and still having blisters appear and I am on Schedule 8 drugs for the pain...( but work thinks it's a bit of sunburn...) ( still working, and cut down to 4 days a week during treatment as the fatigue was killing me. ( working from home now as I was going to the hospital every day..).
So I have decided no more, I have had enough, and how do they know I even have any hormones left at 62, and I started menopause ant 43? There haven't been any hormone tests and I have a script for something..Letrozol I think...
This is copied from the Cancer Council website Side effects – Aromatase inhibitors can cause thinning and weakening of the bones (osteoporosis). Your bone health will be monitored during treatment and you may be prescribed a drug to protect your bones. Consider seeing a physiotherapist or exercise physiologist for an exercise plan. Other side effects may include joint and muscle pain, vaginal dryness, low mood, hot flushes and weight gain. If you have arthritis, aromatase inhibitors may worsen joint stiffness and pain. Exercise or medicines from your doctor may help.
The thing is these are not side effects, they are effects. There is cause ( the drug) the effects are the symptoms. All of which I already have.. imagine how I will feel... yet I have been told I can use hormone creme is my vagina ??? which by the way is already bleeding through the tissues when I wipe it.
Please bear in mind this is only my opinon, I am not medically trained. But really think there is a one size fits all approach to the treatment. Which I don't agree with as we are all so different. ( I have auto immune diseases, which have now been linked to some cancer...)
Anyway, thats me...
Hope it assits with a bit of info as well.
Lee
after speaking with now quite a few women who have been taking these drugs, I have decided not to. this is because 2 out of 5 had cell changes in their uteruses and all of them had no sex life. ( 2 having uterus removed)
I have had invasive lobular carcinoma grade 3 ( due to the length of one of the cell chains.)
I had 2 surgeries, 1 being a mastectomy, the second a redo as they found a cell chain, growing into my body, now 6 weeks of radiation, which was taken too far and there was discussion that I may lost the integrity of the reconstructed breast as I was absolutely BBQéd. Tomorrow is 5 months of this, and apart from the sugeries I have been working.
I have been off the radiation for a week, and I and still having blisters appear and I am on Schedule 8 drugs for the pain...( but work thinks it's a bit of sunburn...) ( still working, and cut down to 4 days a week during treatment as the fatigue was killing me. ( working from home now as I was going to the hospital every day..).
So I have decided no more, I have had enough, and how do they know I even have any hormones left at 62, and I started menopause ant 43? There haven't been any hormone tests and I have a script for something..Letrozol I think...
This is copied from the Cancer Council website Side effects – Aromatase inhibitors can cause thinning and weakening of the bones (osteoporosis). Your bone health will be monitored during treatment and you may be prescribed a drug to protect your bones. Consider seeing a physiotherapist or exercise physiologist for an exercise plan. Other side effects may include joint and muscle pain, vaginal dryness, low mood, hot flushes and weight gain. If you have arthritis, aromatase inhibitors may worsen joint stiffness and pain. Exercise or medicines from your doctor may help.
The thing is these are not side effects, they are effects. There is cause ( the drug) the effects are the symptoms. All of which I already have.. imagine how I will feel... yet I have been told I can use hormone creme is my vagina ??? which by the way is already bleeding through the tissues when I wipe it.
Please bear in mind this is only my opinon, I am not medically trained. But really think there is a one size fits all approach to the treatment. Which I don't agree with as we are all so different. ( I have auto immune diseases, which have now been linked to some cancer...)
Anyway, thats me...
Hope it assits with a bit of info as well.
Lee