Not take any hormone therapy medication…
I’ve just had a six week medication holiday as suggested by my oncologist as Anastrozole wasn’t agreeing with me; it was affecting my mood and mobility. I often felt stiff and achy and lots of other t...
Forum Discussion
Hi @Rdc2022 ... It is interesting that your Onc has suggested Tamoxifen ... How old are you? Have you gone thru Menopause already? I thought Tamoxifen was mainly for pre menopausal women? (Tamoxifen is the only one I HAVEN'T tried! I ended up on Anastrozole after not enjoying Letrozole and Exemestane - and my side effects are minimal - been on it for 4 years now!)
Are you HAPPY with your Onc? My first one was useless, so I swapped and I am very happy with my current Onc. You could get a 2nd opinion .... where abouts do you live (state/town) ... we may have members nearby who could point you to another onc in the area (via PM) .... You can add your location to your Profile.
What sort of BC did you have? Was it 'invasive'? Did your Onc give you the % of likely chance of recurrence? The lower the %, obviously, the better. Stage 1/Grade 1 was a good result to start off with!! .... But as @Afraser iindicated - being on OR off the AIs is no guarantee of not having a recurrence :( And they still don't know WHY up to 30% of those who've had successful surgery/rads/chemo/tablets - goes on to develop Mets. 🙁 It is an area that needs massive investigation - examining the original breast tissue & then the Mets tissue - to try and find a connection - be it a gene or a virus ..... they just don't know!!!
The GOOD news tho, is that 70% DO NOT go on to develop Mets - and THAT is the bit too keep 'in mind'!!
Often it is the 'first AI' that you try, that gives the worst side effects .... so definitely worth considering a change in Meds & giving it at least 6 months to see how it affects you. Not everyone gets side effects on all of them.
Take care & all the best with your decision making xx
Are you HAPPY with your Onc? My first one was useless, so I swapped and I am very happy with my current Onc. You could get a 2nd opinion .... where abouts do you live (state/town) ... we may have members nearby who could point you to another onc in the area (via PM) .... You can add your location to your Profile.
What sort of BC did you have? Was it 'invasive'? Did your Onc give you the % of likely chance of recurrence? The lower the %, obviously, the better. Stage 1/Grade 1 was a good result to start off with!! .... But as @Afraser iindicated - being on OR off the AIs is no guarantee of not having a recurrence :( And they still don't know WHY up to 30% of those who've had successful surgery/rads/chemo/tablets - goes on to develop Mets. 🙁 It is an area that needs massive investigation - examining the original breast tissue & then the Mets tissue - to try and find a connection - be it a gene or a virus ..... they just don't know!!!
The GOOD news tho, is that 70% DO NOT go on to develop Mets - and THAT is the bit too keep 'in mind'!!
Often it is the 'first AI' that you try, that gives the worst side effects .... so definitely worth considering a change in Meds & giving it at least 6 months to see how it affects you. Not everyone gets side effects on all of them.
Take care & all the best with your decision making xx