mazgam
2 months agoMember
Neuropathy
I would really like to connect with someone who has been on a similar journey. I was diagnosed with TNBC in April 2024 . Had chemotherapy, lumpectomy and 3 weeks of radiation. The Neuropathy began as...
Hi mazgam
My sympathies - neuropathy is a pain (no pun intended). I've had it for 12 years - in many cases it improves when treatment stops but not all. I'm luckier that my hands are relatively untouched (a tiny area just behind my nails has affected sensitivity) and affects really nothing. Typing, buttons are all fine. My feet however have seriously distorted sensation. Rarely pain, although they were very painful for about six weeks when the neuropathy first hit (Paclitaxel was my trigger) but the sensations are very varied, rarely the same in the same conditions and can affect my balance - think of feeling as if you are walking on a trampoline or in three pairs of very thick socks. Mind over matter has worked so far, although I have packed in running - I was never a runner, and I am now 79, so it's no sacrifice - but my brain can't out think my sensations at speed, and my sensations say I am going to fall if I run! However lately my feet have been worse, more uncomfortable - contrary to all conventional wisdom, my feet are much better when it's cold and worse when it's hot, particularly humid. So I don't know if it's been a bad summer or something else. My doctor can't advise, my podiatrist can't find any reason and a very thorough neurologist is putting me through a battery of tests! We'll see. Massage helps, warmth doesn't (for me), exercise is good for everything but harder when your feet are really uncomfortable. I hope you find some workable solutions. Best wishes.