Forum Discussion
Lost and struggling
2012 I was diagnosed with DCIS had 3 lumpectomies and Radiation and all seemed good. On my 5 year check I was again diagnosed with DCIS. Now I am 5 years post double mastectomy and recon, and be signe...
Hi.
Best wishes @toni63.
Sometimes words can stay with us.
Sometimes words can stay with us.
I had a mastectomy (2021)for high grade DCIS.
I too was told quite abruptly by a specialist that DCIS is not cancer…it is only cancer if it is invasive.
Somehow, this seemed so dismissive of everything I, and my family, had just been through. It also made me feel a little solitary….. did I even really belong then in this group for example?
I now think of DCIS as Pre-invasive breast cancer. ..as documented in much of the literature. That keeps the cancer word in there and validates the very real shock and distress of diagnosis, treatment decisions, fear of recurrence.
(Just to say- I also recognise that I’m fortunate to have been picked up early.)
I now think of DCIS as Pre-invasive breast cancer. ..as documented in much of the literature. That keeps the cancer word in there and validates the very real shock and distress of diagnosis, treatment decisions, fear of recurrence.
(Just to say- I also recognise that I’m fortunate to have been picked up early.)
Thinking of you and thanks for the opportunity to express my feelings too. Am now ready to move forward.