Forum Discussion
arpie
5 years agoMember
Hubby has started oral chemo this week - if he tolerates that OK without big side effects, they may add a weak solution of Oxplatin to the next session in Mid March. If the tablets DO affect him, we will drop the dose & not do the Oxyplatin.
We are still waiting for results on the sequencing - won't get them for another 3 weeks at least. I am feeling better in myself now that treatment has started. We had his twin brother visit last week with our nephew & they both enjoyed that. He has dementia too - so it was a bit like herding cats when we were out & about!
Damn! He is Her-, so can't go on Herceptin or Avastin. For the immunotherapy drug Keytruda to be 'on the table' he needs both MSI and PDL1 levels to be HIGH! But his MSI is low :( .... so now waiting for the PDL1 results which aren't covered by Medicare, so costing $250 to be done, but well worth it. Keytruda isn't covered by PBS for Gastric cancer yet (it is for Lung & Melanoma tho.)
He is still 'fine' in himself - feeling no pain (which is amazing all the medicos) - it is his dementia that is blocking the pain signals, so at least there is ONE bonus to having dementia! Oh - and he's already forgotten the diagnosis, so that is the other bonus of dementia.
Last night Q&A on the ABC covered a lot of dementia issues - particularly in aged care centres - but the last question about the right to choose your Own End of Life options brought many to tears.
Check it out on iView. It also covers the current Parliament House rape issue - so skip to half way if you don’t want to see that bit .
https://www.abc.net.au/news/2021-02-26/dementia-patient-leaves-q+a-panel-on-aged-care-in-tears/13194334?utm_medium=social&utm_content=sf243409790&utm_campaign=abc_australia&utm_source=m.facebook.com&sf243409790=1&fbclid=IwAR0dOf7N08WmXM5AkD5pW9sTB7jBSjsEnsrMOLxwfg1KrybU6UMUfzoLukc
We are still waiting for results on the sequencing - won't get them for another 3 weeks at least. I am feeling better in myself now that treatment has started. We had his twin brother visit last week with our nephew & they both enjoyed that. He has dementia too - so it was a bit like herding cats when we were out & about!
Damn! He is Her-, so can't go on Herceptin or Avastin. For the immunotherapy drug Keytruda to be 'on the table' he needs both MSI and PDL1 levels to be HIGH! But his MSI is low :( .... so now waiting for the PDL1 results which aren't covered by Medicare, so costing $250 to be done, but well worth it. Keytruda isn't covered by PBS for Gastric cancer yet (it is for Lung & Melanoma tho.)
He is still 'fine' in himself - feeling no pain (which is amazing all the medicos) - it is his dementia that is blocking the pain signals, so at least there is ONE bonus to having dementia! Oh - and he's already forgotten the diagnosis, so that is the other bonus of dementia.
Last night Q&A on the ABC covered a lot of dementia issues - particularly in aged care centres - but the last question about the right to choose your Own End of Life options brought many to tears.
Check it out on iView. It also covers the current Parliament House rape issue - so skip to half way if you don’t want to see that bit .
https://www.abc.net.au/news/2021-02-26/dementia-patient-leaves-q+a-panel-on-aged-care-in-tears/13194334?utm_medium=social&utm_content=sf243409790&utm_campaign=abc_australia&utm_source=m.facebook.com&sf243409790=1&fbclid=IwAR0dOf7N08WmXM5AkD5pW9sTB7jBSjsEnsrMOLxwfg1KrybU6UMUfzoLukc