Great idea @arpie. A private group would be good as we do have specific issues and not always anyone around for support. We are still 3 years into the stupid 'diagnosis' phase for my now 71 year old hubby.
Mother in law had Alzheimer's and 80 year old brother in law has some kind of dementia - he is in a nursing home as he no longer remembers how to walk or talk. He was never given a specific diagnosis (there are over 100 dementias) as he had a brain injury when young anyway.
Our biggest issue so far is the 'shadowing' and no initiative or decision-making capabilities. As his memory is not too bad and he has done the tests so often he knows them and gets them right - ha ha. He is useless with handling money or doing any measuring, lacks emotion, oh the mimicking (usually me, but that is how he gets by), no body temperature recognition, fixations, lack of cognition, sense of smell. I am lucky in that he mimics me by following me into the shower so he is clean !
I have found the supports out there are so text-book but there are no practical helps.
