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K_J_'s avatar
K_J_
Member
11 years ago

Step 3 (part 2)

The problem with compartmentalising this "adventure" is that your aren't really prepared for the bumps along the way. 

After a relatively short wait, my surgeon called me today with pathology results from Tuesday's surgery. For those not following- I had wide excision lumpectomy with sentinel node biopsy 4 days ago. My surgeon and I were very optimistic as the tumour was only measuring 12mm and so for all intents we had anticipated a Stage 1/Clear node/no hormone receptors outcome. I had surgery and knew that I would have radiotherapy. I told my employer that I would be back to work this coming Wednesday. 

My husband and I had chosen to acknowledge the known and work with that information. We didn't want to fall into the trap of fatalism and start planning around things that were, in our opinion, unlikely to ever be relevant to us.

Wrong.

Oh my god sooooo wrong. Apparently my tumour has ninja skills and in spite of measuring pea-sized in two separate ultrasounds, that little trickster is pushing out at 40mm. So yeah, that means stage 2. Not impressed. And then of course the naughty node had to get in on the action too. Hormone receptors? Sure, I'll take both! 

Needless to say, instead of my glorious return to work I'm planning a mastectomy. And axilliary clearance. And chemotherapy. Far out, this was NOT the plan.

 I could probably process all of this if I didn't have a 7 year old and a 10 year old daughter that I now have to tell.

Merry Christmas.

 

18 Replies

  • Thanks for your kind words. Yes, we will soldier through this - there is no alternative! Wishing you love and strength xo

  • Thanks, Sue. It's amazing how much it means to know others understand the mind games that this disease plays. Wishing you every happiness xo

  • Thanks for your support. 

    Feeling a little more positive today.

    xo

  • Bugger.

    I'm in the same club as you. The "yay! I caught it early. Oh wait I didn't" club. Are you going to do chemo first or mastectomy? I did chemo first (just finished) and will be getting mastectomy (hopefully for xmas. I find out next week).

    the positives (out of this hell) are: at least you will know you did everything possible to fight the disease (the mastectomy, the clearance and the chemo). in some ways it is easier not having choices. Having young kids makes it easier in some ways too (im clutching at straws here) because they give you resolve to fight this thing.

    my daughter is 11 and has reacted really well so far. I've told her I'm not going to die, and I'm bloody not, I've decided.

    I did get a wig so I wouldn't embarrass her at school pick up, but I have rarely worn it. I mostly wear a sun hat or scarf. 

    Im so sorry. It's quite unbelievable isn't it?

  • Aww K.j big hugs, it sucks all round, my tumour was bigger then scans showed as well so the expected outcome wasn't as expected either. I hope you find a way your comfortable with to tell your children, I have 6 ranging from 10 yo to 25 yo and telling them was hard, probably hardest with the youngest, but I found being open and honest worked, when I didn't know the answer I said I didn't know the answer but I would try to find out, it's not been one conversation, but a series of ongoing conversations, my gp was amazing and did a 'group' session for the kids where he went thru everything with them, and it gave them the opportunity to ask questions and get answers from a dr which reassured them in a lot of ways. One of the things I really focused on was how amazing my Drs are and that treatments have come a long way, when my 10yo broke down in tears saying I don't want you to die mummy, thru my tears I was able to say ' no dr has told me that's going to happen, I have no evidence to say that's going to happen, in fact I have lots of evidence that says I'm going to get better! ' my ten yos only experience of breast cancer was losing one of my friends to it last year, so understandable her fear I would also die.

    you can and will find ways to get thru this and manage. Good luck chicky xxxx

  • Hi K J!

    I'm truly sorry to hear about your results, I'm too am feeling every bit of what you must be going through as I am currently on a similar journey but not quite the same.  You can follow my journey if you would like in which I have provided some tips and advice to help you get through this horrible journey.  Most importantly though, be positive, take one step at a time and treat yourself along the way.

    Big hugs and best wishes from the west.

    Sue

  • Okay kj I'm sorry to read this same happened with me I had 2 cm that I felt and what they thought was 12mm under nipple was 3 cm so in total 5 cm of growth go me I was ready for lumpectomy 6 of 12 lymph nodes go again I felt fab til that I was prepared I thought next thing I knew mastectomy expander lymph removal 4 ACs 12 taxol 3 months radio then whatever drug for 5 years guess I just wanted to say keep sharing here you are not alone and it sucks it does I won't be the first here to say that but it can and will be done I felt very alone but now I feel stronger xxx it's a crap road the shock is so big one day at a time I have one gal I met on here and her and I msg speak daily so many more my love xxx 

  • Wow 4 days for path results, nice! I have to wait two whole weeks to hear any news.

    Sorry to hear there is more surgery to go but you just got to get all the sucker or you will never feel sure you are in any way safe.

    Work might have to take a back seat for a while. Kids are adaptable and as long as they know you still love them they will be happy with that knowledge.

    Its a lot on you and its good you have hubby support but he'll need support too. Support of family or community is a good thing to have.

    Wishing you the fastest of recovery.