Thanks for the reply Beryl, yes my head is well and truly spinning.
When I was first diagnosed at the beginning of December, I met the breast nurse once and was given her card.
Soon after I asked to see her and was told she was on holidays for Christmas (3 weeks), I never really needed her since then until now.
After all this mucking around I rang her today as I had seen her in the waiting room clinic from time to time. It was a recorded message - not available till June some time, if my situation is an emergency come to hospital, see your GP etc...not very reassuring.
The best advice I get comes from the Oncology nurse who I have seen regularly instead of the Oncologist but she is away with flu, hence the shuffling me on to Registrar at the last minute.
I have voiced my annoyance with the hospital and so I just got a call from the chemo Day unit, trying to explain.
They told me no new chemo drug is ordered it is still paclitaxol as far as the computer shows. They said after I see the Oncologist on the 7th, my chemo appt may be cancelled if I still have neuropathy. I tried saying Im seeing the Registrar not the Oncologist!!!!, I gave up.
Decided I am getting too frustrated and weepy to do this via phone, so I will go to the appointments on Tuesday and voice my dissatisfaction in person. Maybe then I will stop slipping through the cracks?
In the mean time I will try to relax and enjoy the next three days before I have to bang my head against the wall on Tuesday haha I will let you know how I get on.
