Forum Discussion

Harvey1903's avatar
8 years ago

Just diagnosed

Hi just found this site - and have been reading everyones experiences for the last hour!   I was diagnosed yesterday, and am still coming to terms with all of this.  Had to cancel our holidays, and I guess I won't be playing golf for a bit.  I'll keep reading everyones journeys and hopefully get some idea of whats ahead.   Cheers

28 Replies

  • Hi @Harvey1903 - you're found such a wonderful place for support and advice. I was diagnosed in January with invasive lobular carcinoma in both breasts. I had a double mastectomy just over four weeks ago and have already been back at work for two weeks! Between January and April I researched my butt off, and this forum was absolutely invaluable! So many generous 'warrior' women who are happy to share their stories and experiences - warts and all. I'm absolutely sure that the information I was able to put together from the many women on these @BCNA discussion boards contributed enormously to my relatively easy recovery and the feeling of control that I had when I went into surgery - and that I will have when I start treatment. Don't hesitate to ask anything at all. Wishing you all the very best going forward!
    xx
  • Welcome to the group @Harvey1903 You will find support, info and a few laughs on here - don't be backward about asking what you want to know.
  • @Harvey1903 deep breaths , it's such a shock isn't it . I myself have just cancelled a flight today.  I was supposed to be flying to the UK on the 22nd May but I'll be in the midst of chemotherapy instead.  
    This is such a lovely place to hang out in what is such unwanted and difficult circumstances so jump on board and ask anything.  Everyone is lovely and helpful.  Take care xx
  • @Harvey1903 Sorry you have had to join us but you couldn't have found more supporting, loving women than those on this forum. You have a road ahead & I can remember how i felt on day 1 which was Dec last year. I have had a good outcome & my path has been so much easier than a lot of others. My advice is to stay positive & strong & only focus on what you know & not what MAY happen to you. Goal posts constantly change & it's no use worrying about a type of surgery or treatment that may never happen to you. Take notes at each appt & ask questions. there is a lot of info on the BCNA website & get yourself a copy of the "My Journey Kit" which is available free on the BCNA site. I'm sure your GP has recommended a surgeon to you & make sure you get yourself a Breast care nurse. She will be your best friend & they are invaluable with their support & advice. You can look up the nearest McGrath Nurse on their website. There is a lot to take in but take it slow & you will learn quickly. Look after yourself & try to stay fit, eat well & get plenty of time for yourself to relax & take it all in. We are here for you & let us know how you get on. Lots of hugs & I promise that you WILL get back to playing golf!! xxxx 
  • Hey @Harvey1903 ,sorry to see you here but you're amongst loving helpful friends !
    Such a shock for all of us i'm sure ,many emotions are unleashed throughout this trying time.
    I had a lump removed last Thursday , pain subsided now just a bit tender at the moment ,so glad that bit is over ,like you I will be having radiation down the track .Going into the unknown!

    All the best , one day at a time & breathe !!
    Hugs xx

  • Hi @Harvey1903,  sorry to see you here but so glad you have found us.  All the information coming at you in the early days can be overwhelming, words we have never heard of and didn’t want to!  I found it really helpful to keep a notebook and jot down questions between appointments - no such thing as a silly question!  I know you feel like you have no control at the moment and I hated that.  Believe it or not, you will feel better once you have some definite results and a treatment plan.  You’ve got this!  You are never alone - you will always find someone here with support, information and a laugh (yes, really!!! :) ) 
    We have all been where you are and completely get how you are feeling.  Sending a hug, Jane xx
  • Hey @Harvey1903,

    Sux to be here lovely, but welcome.  The start is the worst bit I think until you know exactly what you're dealing with. So many thoughts running through your mind, so much confusion/ This forum holds a wealth of experience, warmth and encouragement.  So voice your concerns and fears whenever you like, everyone is only to happy to help.  We all get it.

    xoxoxo