Wussy needs advice please.

Hi @AllyJay. So sorry you have to go through this - you've been through way too much already. I use the term wuss to refer to myself these days and I haven't been through what you have. My first point is, if they are a teaching hospital, wouldn't they be taking the opportunity to 'teach' how to manage a patient focused approach to your situation? It's not teaching if they just do the same thing every time. Isn't the first principle of medicine  'first do no harm' ?  There is time to plan it/do it, you are in the day before, I can see absolutely no reason for them not to be able to do it to minimise putting you through further trauma. And trauma is what you are dealing with. It is a particular issue of mine - the ignorance of the mental and emotional impact of treatments and procedures, in which all of you are well versed. 100% agree with @kmakm - document every contact you've had, and put it in writing. The patient advocate should go into bat for you as should your GP. If not document their lack of support and see if bcna has any suggestions. If you are in NSW, there is an organisation called Health Consumers NSW. They are an org aiming to improve patient input into healthcare, advocate for patient centred care and co-design in medical systems. They may be able to direct you to someone who can help. @kmakm I have done some work as a 'consumer' rep (I don't like the term) with the Qld version of this org. If you want to do advocacy work they would offer another avenue. There has recently been a BC opportunity in Qld via my state org.

I wish you well @AllyJay. It's not fair that you have to fight for this - to be treated humanely and with respect.
Xx <3