Welcome

Well hello there lovely ladies. Sorry I haven't been on for a while, but it sounds like everyone has been slack : )

I am about 1 and 1/2 weeks into 5 weeks of radiation. side effects (sunburn type thing) is starting.

Started taking the Tamoxifin a few weeks ago. I will be on it for 10 years I am told. My hair is coming back slowly but surely. Cant wait to get enough to colour it and stop wearing these bloody things on my head. I am soooo sick of people looking at me like I am a freak. I wish I had got myself a wig now. I had an old bloke the other day just stand and stare at me for about 2 to 3 minutes....looking straight at me, lucky to blink...man I felt uncomfortable.

I tell you what, my radiation oncologist (Dr Peter O'Brien) is such a lovely person. Even asked how the kids were doing when I seen him last week.

Take care everyone. Looking forward to catching up on the 27th.

Hi Louise,

 

Yes you hould keep hassling the others forthere Pic, they will give in eventually hehehe...

Yes I finished my chemo 3 ths ago now, and I still feel yuk....I know what you you mean about feeling like an old lady and knocking the stuffing out of you......... somedays when i walk as i am like you and try to get out there as much as i can, my bones ache, feel like my 85 year old MIL.... and stairs well i will walk a mile before I start that hill climb......always thinking ahead at the moment hope it leaves eventually....

 

I am now on 8-10 yrs of tamoxifen and this is starting to be a pain, having some strange side effects see Onco next week, hopefully it will be sorted....

But in saying all that I am very very happy my hair is finally growing yeah !!!!!   and I will be starting back at work for a couple of shifts a weeek in a fortnight, will be nice to get out and about and back to normality...

Absolute beautiful day today out of the wind....       

Hope your having a nice day, off to do the washing same old same old....

Talk soon Sue

 

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                       

Hi Susan - great to see your lovely photo (hint hint to others with the standard pink hair-do).

It's certainly been cold again - had to happen I think.

I finished the chemo part of my treatment last week, but now 'look forward' to 9 months of Herceptin every 3 weeks. At least I escaped radiation I suppose.

Been trying to get out on daily walks, and when the sun shines I get out into the garden. Any exertion really knocks the stuffing out of me though. I feel like a little old lady sometimes, especially if I have to walk UP hill (read very slight incline). So far the walks are very flat.

Hope everyone is fine and really look forward to seeing you all in a couple of weeks.

Louise xx

Helo everyone,  Doesnt look like many have been here lately, but if your there HELLO !!!

Hope everyone is coping ok and keeping warm, I cannot believe how cold it is.

I had to take my daughter to an Eistedford up at Cessnock today, OMG was it cold I am still thawing out...........

Am off to bed to get warm and will see if anyone is on tomorrow night ....

 

take care  Sue :-)

Hello All,

Firstly...CONGRATULATIONS Sharon on finishing Chemo : )

One lot of treatment down...one to go !

I was just thinking today that I don't remember getting anything back telling me that my registration went through and I was all good to go. So, I am just going to turn up.

Looking forward to it....I am told it is a good day.

Hope everyone is staying well, considering how freaking cold it has been...man how bloody cold is it !!

 

Hi everyone,

I had reasonably bad cording in the begining that pulled from my drain scar right down to my wrist, after a few visits with Kristin this progresively got better and now have  minimal cording, you have to keep up the exercises every day for pretty much the rest of your life.

My last day of chemo tomorrow, and then just waiting radiation. I can't wait to be able to taste what I'm eating.

Hope to catch up with everyone on Saturday at the Forum.

 

Hi everyone,

I had reasonably bad cording in the begining that pulled from my drain scar right down to my wrist, after a few visits with Kristin this progresively got better and now have  minimal cording, you have to keep up the exercises every day for pretty much the rest of your life.

My last day of chemo tomorrow, and then just waiting radiation. I can't wait to be able to taste what I'm eating.

Hope to catch up with everyone on Saturday at the Forum.

 

Hi All,

Great photo Diann, I wish I could take a good photo like that. Can't wait to catch up again.

Louise...I will be very interested in what you find out about the cording and snapping process. The lady I am seeing at the moment told me that it is good for you !!  you have to trust them don't you.  

Hi Diann - great photo! You're doing well loading it up if you have a new computer. Usually takes a while to tame them..

Look forward to seeing you on Saturday.

Louise

Hi Karen,

Interesting about the cording. We'll have to swap notes next Saturday. My cording doesn't look as bad as some photos I've seen on the internet, but it's still painful and really restrictive, and gets worse if nothing is done about it. It took a while for Mary to  acknowledge that it was cording causing my arm problems and not just chest tightness. Does your physio 'snap' them? Mary did that with mine, but I've since read other advise that that could be unnecessarily severe on the lymph system. Hard to know what to do sometimes...   I was talking to Alex at Chemo on Friday, (because I've now got a lump on inside of my elbow that we think is caused from snapped lymph vessel). She brought the physio over from the hospital, who recommended some other physiotherapists to see it while Mary is OS. So it'll be interesting to see how they approach the treatment.

Looking forward to catching up with everyone who's going next Saturday.

See you then

Louise xx