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Hopes_and_Dream's avatar
8 years ago

Tumour Marker up!!!!

I had a blood test last Saturday in readiness for my 1st anniversary checks and scans.  I got a call back yesterday to visit my GP.
I tried to be positive l and hope he just wanted to discuss my vitamin D or calcium levels (yeah, right!) but as soon as I walked into the surgery he said that my tumour marker was up from last time.
When I was diagnosed on 20 July they were 35, down to 25 in January for my 6 mth blood test, but back up to 36 this week.
He asked whether they usually fluctuate but I haven't had enough done to have a pattern yet.   He said it may be nothing but wants to be cautious.  
I was already booked in for a mammogram and ultrasound Friday 18/8 anyway and an appointment with my cancer surgeon Tuesday 22/8.   Depending on the results next week, I'll go back to my oncologist for further review.   
I didn't need chemo or radiation last year as I had a mastectomy with clear margins and clear lymph nodes (grade 1, 13mm IDC)
I feel OK and am just trying to keep a calm and logical head at the moment, but the fear is lurking just under the surface.  I don't want it to bubble over!    I've heard that tumour markers can be unreliable...
Just when I hit 12 months and thought I could relax a little, another kick comes out of the blue.  And even if everything is fine this time, how do I ever trust my body and not think about the cancer coming back.  I thought it was just the anniversaries which were going to cause anxiety!  I think this has just hit home that I am going to worry forever!   Jane xx


22 Replies

  • thanks so much Marg, you have made me feel much better.  I just needed a logic kick - big breath and tackle whatever is waiting head on.  Not much choice is there :)   Jane xx
  • Tumour markers are not a very reliable diagnostic tool. Ten years ago my much loathed oncologist used to request them and it literally used to make me feel sick. In the end I stopped having the test and sacked the oncologist. The lovely guy I'm seeing now says (imagine a Cuban accent) 'No, no tumour markers. They make everyone crazy.'

    There are, of course, situations where that test is really useful but, thankfully, it seems to have fallen out of fashion now. Primarily because it is so unreliable. If you have a look through here you will find stories of women with colds having their markers go through the roof, people with high scores tested and probed and zapped and found to have no detectable cancers. On the other end of the scale, I had a whopping great tumour recurrence and my markers on diagnosis were well within normal range.

    This shit is so stressful, Jane. Hang in there and wait until your oncologist has their two bobs worth. If it is doing your head in, or likely to, make an appointment to see them anyway--it is their department. Good luck with the rest of it, it's a jungle out there, we just have to do the best we can. Marg xxx