Time for a new treatment

Hi Amy I agree so much with what you are saying. I want to live my life but the problem is that after two years diagnosed everything has settled down and people forget about the diagnosis. I am ok with that as long as I still get support. I don't get any support now. I also found the stigma attached to the advanced stage so debilitating. I found women with earlier diagnosis being attended to so well in outpatients by the breast care nurse when I was told so little could be done for me since "the horse had bolted from the stable" that is what the breast care nurse told me. later I felt invisible in the waiting room as I waited to see the oncologist and surgeon as I witnessed the breast care nurse be so attentive to a woman who was receiving chemo. I feel the diagnosis is somewhat a death sentence and yet I am living quite well at the moment, or maybe I hide it well. I am the same as you it is in my bones and I live in fear re progression feeling it is only a matter of time. And yet I am still going ok at this stage. Why is there such apathy regarding those with advanced breast cancer. I couldnt believe chemo would not be an option for me because the cancer had already spread.  I would have thought it would still be good to try to kill the cells circulating in my body. Such a strange situation to be in and I feel for you as much as I feel for myself.

Melissa