Hi Amanda
I am so upset by your recent news - upset but still hopeful that the NEXT treatment will be the one for you. I think that is what we have to be - hopeful.
I agree that more advocacy needs to be done on research for stage 4 disease but like Amanda says we also want to spend more time with our families and loved ones.
It is so difficult being stage 4 - especially if, like me, there are no outward signs of the disease. I think a lot of people think that it's all OK for me now. They don't realise that the cancer is really widespread in my bones and that I live in fear that it is only time before it progresses to other organs in my body. I don't want everyone to be miserable all the time but I also don't want people to forget that I am living with a terminal illness and it is highly likely that I will die early because of it.
Anyway, I won't rant now (!)
Sending you all my positive vibes Amanda and make the most of those cuddles with your beautiful children.
Be hopeful always!
Amy xxx