Time for a new treatment

Thank you everyone. I'm moving on as I have to and currently I feel good. A few points on the above: - you make great points Joy but I disagree with enough having been said on the issue - we live in a culture where death is swept under the carpet - stage 4 disease is much the same - exclusion from the broader breast cancer community is widespread (not everywhere). The 'survivors' of EBC are more generally focused on moving on, on breast reconstruction, life after breast cancer and it's hardships. We need to engage the BC community in active discussion about stage 4 disease. We need to stop hiding because we may upset and frighten people. There was a post on here recently about how someone would not come back because they had read about someone with stage4 disease! As much as I don't want to scare people, fear is a wonderful motivator. The numbers in in the EBC community - we need them onside, advocating for a cure as much as we are. It's such a pity to talk about us and them. Since my diagnosis of Stage 4 I have been unable to find face to face support with other women - its all online ir hospital based. I've already grieved too many people but I also see so many stories of hope - thank god for the Internet or I would feel very alone. AnneMaree - yes we do need to be advocates but to be brutal - we keep dying. We are busy everyday just trying to stay alive, we know our time is limited so we choose to spend out time cuddling our kids and partners, having our chemo, seeing drs, managing side effects - I would love to be out there advocating more - I haven't been even able to take a holiday because I have until this week had weekly chemo - it's priorities and my family comes first, advocacy second. I question the statistics - Joy help me out here. How much early detection finds cancers that could be stable inactive for years without treatment? How much does this skew statistics? What are the true recurrence rates? Why if they are so successful with EBC is stage 4 still incurable? Where does the money from fund raising go? I will be looking closer into this. I suspect a disproportionate amount is spent on education and awareness. I perhaps hold quite a bit of anger about priorities in the BC community because of my status with this disease. At the end of the day - as Joy said enough is enough, it is time for a cure! We can only advocate for this if the entire BC community unites in this cause and stops sweeping stage 4 disease under the carpet. Amanda xx Ps sorry for typos - have done this on my phone.