Tamoxifen after a double mastectomy

I understand you not wanting to change medical teams if they've been mostly good but it doesn't sound as if your oncologist is really listening to you and you should be seeing her on a regular basis.  I can only go on my own experience but it does seem to mirror other people's experiences.  I see my onc every 3 months at the moment but it will drop to 6 monthly once he's happy that I have settled into treatment (the surgeon will be every 6 months too but alternate so that I see one of them each quarter).  I am on Letrozole and have been since August 2018.  My joint pain crept in slowly but became really debilitating.  When the onc saw how bad it had become, he was really concerned and suggested a range of options.  The one I chose to start with was 7 days of prednisolone.  The change in my body was nothing short of miraculous.  What I have realised since doing that though, is that the change in my mood and my ability to get through the day has been equally miraculous.  My view of life and the world had become really dark simply through the difficulty of dragging myself around and knowing that was what it was going to be like for another 9 1/2 years.  So, ask the questions, or find someone who can advocate for you - if it's pain then a pain-relief solution (a referral to a rheumatologist if needed), a break in treatment, a different therapy drug...  You certainly shouldn't be left to sink.