Hi Sue
Last week I had some genetic testing for the BRCA 1 and 2 gene. My mother had a different type of breast cancer to me 7 years ago and was tested, but didn't have the gene.THey didn't test me as their theory was that if mum didn't have it, I wouldn't either. My dad's sister died of BC at 29. As I was only 40 when diagnosed so now they think that there maybe is a connection as my family tree is peppered with all different types of cancer on both sides. So now they are testing to see if it is from my Dad's side. I read in the paper last week that Melbourne researchers have apparently found a new breast cancer gene called XRCC2. (of course it was after my genetics appointment, but I will still enquire about it when they give me my results). There is so much that they are learning about genetic testing everyday. So much so - they said that if I do test positive to the BRAC1 or BRAC2 gene they will retest my mum as there is a new element to the testing that they now do and didn't do 6 years ago. Don't feel selfish for wanting to look after your health and make informed decisions. I read a quote recently that kinda summarises that - "Never base your life decisions on advice from people who don't have to deal with the results" Good luck and keep asking questions x Liz