Hello
Hi to everyone
My name is natalie and this is the first time on here. Im now 40 years old with 3 children and was diagnosed in august 2010 with secondary in the lungs.
My main concern is that im ...
Forum Discussion
Hi Nat
I can imagine how you are feeling too. I am 39 with 3 children (5, 7 and 10) - I have numerous lung lesions, a skin met and an enlarged axilla node. The disease spread for me while on was on FEC and Taxotere for Early BC after surgery and axilla clearance. As Sam said - it can be so different for all of us.
I am Her2positive too and currently on the Bolero 3 trial - I have weekly chemo which so far is keeping the disease stable. I am awaiting results of my latest scan yesterday. I was completely devastated by the secondary diagnosis and find thoughts of not being here for my husband and children overwhelming at times but most of the time now I just try to focus on the present and enjoy life now as none of us know what tomorrow brings.
There are many women with Her2positive secondary disease who, since herceptin have lived 10+ years - we can talk about this disease as a chronic illness now. There are new advances all the time. I remain hopeful - I want to be here for my kids and husband but the best I can do is be here for them right now because I am.
You are not alone - keep in touch.
Amanda xx
p.s. to answer your initial question I met a lady in the BCNA office who has had lung mets for 7 years - never had a remission but still going strong. :-) Gave me so much hope.