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Lydia_B's avatar
Lydia_B
Member
12 years ago

New Member

Hi,I was diagnosed in Oct 2012, aged 35.  I had a lumpectomy, and 3 lymph nodes removed.  The cancer hadn't spread into my nodes.  So I was very lucky!I received 6 months of chemo.  I had 4 cycles of AC 2 weeks apart, and then 12 weekly Paclitaxel doses.  Chemo very hard for me.  I was lucky enough to experience nearly every symptom possible!   I am about to start my last week of radiation.  I will be receiving 6 weeks of radiation.  I'm pretty sure this is a normal amount for most women.I'm also having Herceptin every 3 weeks for 1 year, due to my tumour being HER2+.  This should finish around Feb 2014.It would be nice to talk to women that have been through, or are going through, what I am going through.  There are so many questions to ask, and things to know.  My doctors and the nurses have been fantastic, but I is nice to talk to others.I will be starting Tamoxifen after my radiation finishes.  I'm nervous about this, because I am experiencing a lot of menapausal symptoms already - hot flushes etc.I look forward to hearing from others like me.Lydia

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  • JENNIFERJ's avatar
    JENNIFERJ
    Member
    12 years ago

    HI ATLANTA, I WENT PRIVATE FOR EVERYTHING ELSE EXCEPT RADIOTHERPY. I IS GOOD A THE RAH THEY GIVE YOU A PARKING PERMIT AND YOU DO NOT HAVE TO WAIT AROUND EVERYONE IS IN AND OUT . THE STAFF ARE LOVELY AND THE BEST THING YOU DON'T HAVE TO PAY. YOU ARE NOT ON A WAITING LIST YOU WILL GET YOUR TREATMENT AS YOU NEED IT. XXX JENNY XX IF YOU WOULD LIKE TO CATCH UP WITH US WE ARE HAVING DINNER AT THE HIGHBURY HOTEL ON TUESDAY NIGHT 7 PM YOU ARE MOST WELCOME XXXX

  • Atlanta's avatar
    Atlanta
    Member
    12 years ago
    Hi. My name is Vanessa. I am triple positive as well. Just had my second AC chemo. I have a question about the RAH. Did you have all of your treatment there or just radiotherapy? I don't know whether to go public or private for radio. I know I can't afford private however do you have to wait longer for treatment in the public system? I dont want to delay treatment. I am sorry to hear about your friend Karen. Vanessa
  • Anonymous's avatar
    Anonymous
    12 years ago
    Hi Lydia, welcome to the Adelaide BC Friendship Group! I know you will meet a lot of lovely ladies who can support you through your journey. I am also HER2+. ER+ and PR+, and had AC chemo. I found it very heavy going too. I am having herceptin as well. All my treatment has been through the RAH too, and I can't speak highly enough of them! :)If you'd like to meet up with other Adelaide ladies, please feel free to come along to one of our get-togethers. Details of get-togethers are posted on this site, our Face book page and a schedule can be emailed to you if you like. Take care Celeste ?https://www.facebook.com/AdelaideBreastCancerFriendshipGroup
  • Nessk's avatar
    Nessk
    Member
    12 years ago
    Hi Lydia,I had my surgery at St Andrews as well. I had Dr Bochner. I'm not HER2+ but am going through chemo at the moment. I just finished my 4th round of AC and are about to start Taxol on the 8th July. I'll have 5-6 weeks of radiotherapy which I'm thinking I'll go to the Lylle Mac, then go on Tamoxifen after that. I had a really hard time doing the AC so my Onc decided to put me on Taxol hopefully to not make me so sick. Ethier way it's going to suck big time. Vanessa x
  • Cherylek's avatar
    Cherylek
    Member
    12 years ago
    Hi Lydia, like you I'm also HER2+. I am about to to do Taxol 12 tomorrow. My last one, can't wait! This week my symptoms have been the worst so far. Hands are puffy and rashy, fingers very sore, toes as well. I feel really bloated and unwell. I already have my first appointment at Radiology (I think it's a information session) on wednesday. I have chosen go public with the radiation, is this what you did? How many side effects did you have from the radiation? This is really concerning me at the moment as I am managing to work two days a week. Regards Cheryle :)