I haven’t had a breast care nurse and it would have been useful prior to surgery as post hubby had to go try find a suitable crop top for me to wear home I knew nothing. It was only that a nurse on the ward that clued us in. Possibly the failure in this regard falls to the fact I was only having a lumpectomy but I still needed support.
When I asked my surgeon she hinted that there were some political games being played about nurses not working with some surgeons patients - pretty poor if you ask me
it all changed dramatically once I went to oncology. My medical oncologist has an oncology nurse in his practice and the treating hospital has a breast oncology nurse attached to the oncology ward. I believe although I haven’t accessed them that there are also a couple of breast care nurses attached to the hospital as well. Radiation oncologist also had nurses available for me.
Ultimately this hasnt been that that big an issue as I am also fortunate to have a close friend that is a breast care nurse who I could ask questions of and she did offer to do more if I needed it but really you don’t want to put your friends in that position!
in my experience once diagnosed someone should be allocated to you and it should be their job to follow the patient up. I was so completely overwhelmed with the diagnosis, trying to sort my life out, trying to sort work out and generally deal that I didn’t have time to chase up a breast care nurse.