Hi everyone,
I have just read this post and wanted to respond to all of you. I can see that there have been varied experiences with accessing a breast care nurse and this has been discussed previously in the online network. See response from @Marianne_BCNA below from a similar discussion regrading breast care nurses.
Hi all,
Thanks for alerting me to this conversation
@iserbrown. The very varied experiences and disparity in care you all describe with breast care nurses reflects what we learnt from our State of the Nation project. We are aware that this is particularly an issue for women who have neo adjuvant therapy as they may not see a breast care nurse until much later in their treatment or at all. We have fed the information we received form the State of the nation back to McGrath and CNSA (Cancer Nurses Society of Australia) and have been in close communication with them. There isn't an updated position statement re breast care nurses but I understand that this is a priority for them and we will maintain communication with them during this process.
As Marianne has mentioned this is one of BCNAs priorities from the State of the Nation report and we will continue to advocate to government for increased funding
for metastatic breast care nurses to enable training for breast care nurses in treatment
pathways for people with metastatic breast cancer. BCNA has been corresponding with the McGrath Foundation regarding this deliverable. We will keep you updated regarding further progress in this area.