Forum Discussion
Margherite
12 years agoMember
As others have said before me it's not as bad as you think esp on reading all the material. I was so anxious I cried when I got to my first chemo. I've had five months worth and am nearly finished my six weeks of radiotherapy. This is going to sound weird but I've been really lucky that I have come from a background that sent me into years of counselling and the old serenity prayer of courage to change what you can, surrender to what you can't and wisdom to discern the difference...or something like that. Dad was schizophrenic and life was really hard when I was little. I told my friends who I met in a support group who had a similar experience that this is so different. It's not hidden and there is lots do support......it's just remembering to reach out for it so you're on the right track. not that I'm trying to minimise what your going through ... As I said I was highly anxious....I tried to look at the things I could take some control in... I bought myself a lovely wig (my health insurance gave me $200 back and I can claim it on tax as a prosthesis ) I continued to work part time which gave me a routine and I could often work from home. During chemo I watched moves on my ipad and took all the medication suggested and I wasnt nauseous but I do have an iron gut. Everyone is different. I stopped reading too much stuff as it freaked me out. I spoke to all the nurses at chemo...I contacted the breast care nurse who offered 1:1support and later suggested the oncology rehab program. There's a public and private one. I decided to go private as it was totally covered by my health insurance if I did it this year. I started two weeks ago and it's great to have the muscles in my legs responding to me again. I felt so weak and unsafe in my balance. And was annoyed that I kept getting told yes, that's all normal and I didn't like the "new normal". Rehab have also offered me 1:1 psych which is specific to our journey helps me look forward but also re look at the effects of the past which are messing with my head. I got given a CD of relaxation strategies and how to live in the day/the moment. I feel like I am sharpening some of the old tools I have forgotten to use in overcoming past struggles and am gaining some new ones. I wish I knew now what I did then. Do get lots of sleep.....I found I slept best separately to my husband for a while so I could elevate my mattress if my legs got swollen and generally wouldn't be awake listening to him snore. I set my alarm a little earlier than his so I we could connect and snuggle in the morning. I know I'm waffling too much but maybe the best thing I can say is honour yourself and the journey and be kind to yourself and know you are not alone.