Forum Discussion
Invasive Lobular Cancer (ILC)
Hi all, I have just discovered that ILC is lumped into general ductal breast cancer. America research have started to recognise there are huge differences. Treatment in Australia is the same as ducta...
@KezzaG - there are so many on here that can totally relate to everything that you've been thru and some.
So many of us were also diagnosed not long after having a 'clear' mammogram (given a false sense of security in a machine that was never going to detect ILC as they don't tell those of us with dense breast tissue that they really need an ultrasound!).... Pretty well none of us knew that having dense breast tissue was a hindrance in detecting BC either.
Many had no family history of BC either - and most have had family & friends who don't just 'get it'. They just don't understand the fear or recurrence & unrest in believing the treatment had WORKED, even after completing our 'active treatment'.
It is like we are cocooned for months, from diagnosis, during surgery, chemo, rads & tabs - then BOOM! You are on your own & supposed to 'get on with it'!!
Put up any questions you may have here, and we'll all do our best at replying to the best of our knowledge ..... to help you thru the bumpy bits ..... cos we DO 'get it'.
All the best for your remaining 2 Rads ...... A word of warning - I got strangely emotional on my last Rads appointment ..... they'd become part of my 'inner circle' for 4 weeks and I was a tad scared of 'leaving them' at the end! Really weird - so take some extra tissues with you on your final day, just in case xx
Take care xxx
So many of us were also diagnosed not long after having a 'clear' mammogram (given a false sense of security in a machine that was never going to detect ILC as they don't tell those of us with dense breast tissue that they really need an ultrasound!).... Pretty well none of us knew that having dense breast tissue was a hindrance in detecting BC either.
Many had no family history of BC either - and most have had family & friends who don't just 'get it'. They just don't understand the fear or recurrence & unrest in believing the treatment had WORKED, even after completing our 'active treatment'.
It is like we are cocooned for months, from diagnosis, during surgery, chemo, rads & tabs - then BOOM! You are on your own & supposed to 'get on with it'!!
Put up any questions you may have here, and we'll all do our best at replying to the best of our knowledge ..... to help you thru the bumpy bits ..... cos we DO 'get it'.
All the best for your remaining 2 Rads ...... A word of warning - I got strangely emotional on my last Rads appointment ..... they'd become part of my 'inner circle' for 4 weeks and I was a tad scared of 'leaving them' at the end! Really weird - so take some extra tissues with you on your final day, just in case xx
Take care xxx