Invasive Lobular Cancer (ILC)

Be aware there are differences within ILC.  For me, mine was picked up on a general screening mammo as I had no symptoms.  It turned out to be pleomorphic which, I have been told, means that it grows pretty damn fast and may have only been there for 1-2 years.  As it was ILC, it was incredibly hard to see and my surgeon was amazed that the irregularity was spotted. I booked the screen because I was ticking things off.  If I had gone a few months earlier or a few months later, the story may have been quite different.  It's not so many years ago that no-one realised that ILC was a distinct BC.  I think it's important to push for better recognition and, therefore treatment.  It's also important to realise that these things are only becoming known as we go along.  According to my onc, there is going to be an explosion of knowledge in the BC world within the next 5 years to the point that they will be looking at current treatments as "stone age" - there is that much happening and he has already seen it with lung cancer and melanoma.  I am sorry for those who don't feel confidence in their medical team and I totally agree that if you don't, you should find someone else.  I do trust mine but I know they are limited by what is currently known and available.