only into my secodne week of radiation therapy, as the radiologist said im a beginner, i was told it would be 5 weeks of it but possibly more. and that contact type stuff they use just comes off . I its a long trip by mini bus to the rbh and back specially with spinal /hip /shoulder issues . my issues read like a shopping list. anyway, now the NDIS my daughter and I both qualify but i just cant deal with it , meanwhile niether of us get any help and daughter continues to do nothing. I was talking about needing transport to medical appointments etc and ozcare and centacare both said they couldnt do it god only knows why.I am worn out /burned out and I hurt that bus trip is agony, and to top it off this last weeked i spent battling the flu I darent ask what is gonna go wrong next

Hang in there @tisme just stop for a minute and look at what you have achieved. Wow you have done 3 out of the 5 weeks already so pat yourself on the back for that. None of this crap is easy and the least of your concerns at the moment is your housework. Just prioritise what you have to do first which is get rid of this bloody disease them in a couple of weeks when the rads are finished just have a look at what is next most important thing to get done. Small steps and you'll get there. ( you will ) . Also there a lot of organisations out there of women who do sewing for those that need support like the Zonta Pillows which get done. Give them a call and see what they can do or post to you re support cushions. Be kind to yourself and see how much you have achieved already.

Hi tisme, radiation is exhausting for sure,especially so if you have other health issues.Have you asked about seeing a social worker at the hospital where you are having radiation? A social worker could arrange the help you need- that’s their job.Perhaps it’s time to ask family and friends for help? We are often too proud to do that or don’t realize how tough radiation is going to be.Hope you get the help you need.xx

Hey tisme, that would wear anyone out! Be kind to yourself. The NDIS is tough to navigate. It took me 18 months from my application, through a review, and I finally got accepted 2 weeks ago. There are advocates who will help you, or if you can find a social worker they should help. I know a lot of the advocates, social workers etc around here are run off their feet with it lately, they have a lot of people asking for help. If you can put it off while you aren't well that might be a good idea, it takes strength.Hang in there, things will get better if you just keep plugging away. Can you listen to mediations or podcasts while you're on the bus? They can take your mind off things.

You are so close to the finish line. Put one foot in front of the other and keep going. You will get there. And please don't worry about the housework. An extra two week's mess isn't the end of the world. It can get you down, so just promise yourself a lovely big tidy up in a fortnight. You are doing the best thing for yourself and your daughter by having this treatment. Hang in there, K xox

@tisme I work in the NDIS space, so if you have any questions about the NDIS, feel free to send me a private message.

i have had enough | BCNA Online Network

Mira
Member
6 years ago
Hey tisme, that would wear anyone out! Be kind to yourself. The NDIS is tough to navigate. It took me 18 months from my application, through a review, and I finally got accepted 2 weeks ago. There are advocates who will help you, or if you can find a social worker they should help. I know a lot of the advocates, social workers etc around here are run off their feet with it lately, they have a lot of people asking for help.

If you can put it off while you aren't well that might be a good idea, it takes strength.

Hang in there, things will get better if you just keep plugging away. Can you listen to mediations or podcasts while you're on the bus? They can take your mind off things.
tisme
Member
6 years ago
the trip to and from the RBH is wearing me down ( all of us , ) catch the bus at 8.30 am ( for example ) get there an hour or so later , appointment at noon or later , 5 days a week. not able to sort out home stuff............ ndis or what ever cant even get in to see a gp and its only week 2
Giovanna_BCNA
Member
6 years ago
Hello @tisme hope that you are on the mend and feeling better after your flu. It can feel like ages and you can get very tired from radiotherapy. Try to take one day at time and keep your medical team informed.
tisme
Member
6 years ago
to unwell for radiation ?? ive got a cancer care nurse at the RBH i can email and talk to ., im on antibiotics for other issues but they don't help with flu the bus trip doesnt help god my back etc. doc tried the ambulance transport but u have to be ready 3 hours before the appointment. I have only had one week of radiation so far ( this is week 2 ) I was tired before but now .............................
TonyaM
Member
6 years ago
That flu can last for weeks- you poor thing.You might be too unwell to go to radiation- have you rung them? It’s a sad fact but some friends will show their true colours when you are low and some will step up.Is there a Breast care nurse you could talk to?
tisme
Member
6 years ago
I have no family cept an autistic daughter , and friends I thought I had , ...................... i dont a social worker and a psychologist were supposed to be organised but not heard anything. i met one social worker years ago ( worked for centrelink ) she was useless. another , an oncology social worker , nothing she could do , seems to be the story of my life what I need i dont qualify for or ..................... i battled flu over the weekend no im ok so long as I dont move or cough etc then i hurt
TonyaM
Member
6 years ago
Hi tisme, radiation is exhausting for sure,especially so if you have other health issues.Have you asked about seeing a social worker at the hospital where you are having radiation? A social worker could arrange the help you need- that’s their job.Perhaps it’s time to ask family and friends for help? We are often too proud to do that or don’t realize how tough radiation is going to be.Hope you get the help you need.xx

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