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ShazS's avatar
ShazS
Member
8 years ago

Herceptin

Hi All, Was told I will be having herceptin any advice please. Shazx

25 Replies

  • Thank you all for your experiences gives me a look at what's ahead take care all Shazx
  • 13 down , 5 to go. My treatment is for 18 over a year . Every 3 weeks with the Taxol and then on its own.Infusion given over 1/2 hour and not as many (if any ) side effects compared to chemo . For me , I got shakey and shivery while it was going in (its cold!!) but paracetamol helped with that. I think it has slowed down my hair growth a bit? And I get flickering eyes and a runny sometime bloody nose. You have to have a heart scan every 3 months as it can damage your heart, but my scans have been all good.I don't get much sleep anymore but whether that's a side effect or just my age ......who knows???I see some women working away on laptops as they're being infused and then straight back to work, whereas I go home to bed for a quick nap, so again it affects different people differently. And apparently there's a movie about this "wonderdrug" starring Harry Connick Jnr if you want to look it up . All the best with it, I finished chemo 6 months ago and if I could just get a good nights sleep , I think I'd almost be back to feeling 'normal' again! :)

  • Hercepton starts with paclitaxol usually and is given 3 weekly for 17 cycles. You will be monitored for side effects including either an echo cardiogram or a muga scan (or also known as gated blood pool scan)...usually 3 monthly initially and before treatment starts. 

    Once you've finished the chemo part you will have much less side effects. I just had a bit of tiredness the week of treatment but thst was all. I needed mine stopped early due to issues that was picked up with the monitoring. But I have made full recovery since. 
  • I'm having it for 12 months too but no idea when it starts (think it starts with the placitaxol maybe....)
    sorry no help!