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karinkragh's avatar
karinkragh
Member
15 years ago

first time user

Hi I am in my 2nd year after being diagnosed. I have managed very well by working and talking to a network of family and friends.  But this year at 18 mths I am finding that I have days where I am ...
Linda_7's avatar
Linda_7
Member
15 years ago

Hi Chris and Karin.

Just wanted to say hello, and let you know ,you are not alone. Girls, why wouldn't you have your down times? After all you have been through and are going through!!  Sometimes, "trying to stay positive" is not enough.

For me, well this December, it will be 6 years after diagnosis.  And for some, my experience was straight forward. But for me, my world fell apart. Oh, I kept positive, and kept looking toward the future. I have my faith, and believe me , I was and am  holding on tightly. But I needed more.

For me, a good psychologist helped. Maybe for a short time, but to unload to a professional was helpful for me.And of course, my support group.

I still get mad when someone says to me to be positive!! What do they know?? Have they walked in my shoes?

So, girls, yes, there will be side effects from medications.  And yes, your moods will swing. And yes, we will still be paralyzed by fear. 

But, I for one, want to live, with as much as I am able.  And a future with promise.

So don't  give up,

Love, Linda