Hello kind friends,
I typed "prognosis" into the search bar, hoping to find some answers. I found this thread with all of your eloquent words. I thought I was doing well, reading up on BC, keeping my records in a file, writing my questions down before appointments, eating better, giving up alcohol...doing the Oncotype DX test and deciding not to do chemo...preparing to start radiotherapy soon - but I seem to have just woken up to the realisation that I do not know what my 'reality' is.
I'm doubting my choice re chemo. Am I a deluded fool to skip it? I simply could not (still can't really) believe I have cancer - there's nothing wrong with me, apart from what the medical people have done to me! I've been passed from one type of doctor to another and had one chat on the phone with the BC nurse, but there is no one person I can identify as 'in charge', with a comprehensive understanding regarding my case. Everything I've experienced is fragmented, all isolated events with different people who only know what they need to know to do their jobs. I don't know my prognosis. Does anyone ever get a prognosis? The "being alive in 5 years, 10 years, 15 years" stats leave me cold. Are we with BC supposed to be grateful? Are we to assume that we definitely have shortened life spans - even though no one has spelled it out? I just don't know how to 'plan' for my future. How do you do it?