BreastScreen NSW and Qld may be advising of your Breast Density in 2025 - cancer or not!

Hi Sam @smillsbcna

It is Terrific that BCNA will be actively engaging with the national review of BreastScreen .... let's hope that it gets past the post this time for ALL states.  Weird that BreastScreen Vic has 'said' they will do it, but haven't implemented it ....

Whilst not every woman may be able to afford an MRI if put to them as an additional 'screening tool', I am sure that many could at least find the cost of an Ultrasound within their ability to pay .... and that alone should hopefully give a more definitive diagnosis than just a mammogram - specially the 2D ones that are all that is available for rural/regional women - who once again have to accept substandard medical care than our city cousins - where gold standard care may be taken for granted. :(  It was the BreastScreen Bus in NSW that missed MY Lobular, just 4 months before my GP felt the tumours - and after my surgery, I asked for them to review my films (in full knowledge of my surgery) and they STILL couldn't 'see it' on the films - whilst my GP could 'feel it' with just a manual exam.

What it boils down to, really, is the NEED for us TO HAVE THE CHOICE!  Knowledge is power.

Here is the RANZCR document re mandating  the reporting of breast density in both screening and diagnostic settings in Australia and New Zealand ... (and BCNA gets a mention in the  References at the end.)

I wonder if it was an accepted method of detecting earlier Testicular cancer, if it might be taken more seriously - or would they assume that men couldn't/wouldn't pay for it as well?

Hi everyone, Sam here from the Policy & Advocacy Team at BCNA. This is such an important conversation and is a key priority for us this year as we are engaging with the national review of BreastScreen which includes consideration of things like risk stratification and the reporting of breast density.

BreastScreen Victoria is now the latest state/territory BreastScreen service to make a commitment to report breast density - although this has not yet been implemented. We will be advocating for the remaining services to follow suit as soon as possible (QLD and NSW likely to be looking at this in 2025). 

Whilst we join the RANZCR in the position that breast density should be reported - we do acknowledge the counter arguments that exist. One of these is that currently the majority of alternate screening techniques recommended for women with high breast density such as contrast-enhanced mammography (CEM), ultrasound, or MRI are not funded by Medicare and incur high out-of-pocket costs. It is an ethical dilemma in telling someone they have high breast density and also advising them that they may not be able to access the screening that they need due to how much it costs. 

It is still our position that we must empower consumers with this information, but we acknowledge the parallel piece of work we need to do to advocate for these alternate screening techniques to be subsidised for those who need it to ensure equity of access.

I wanted to assure you all this is a top priority for us in 2024 and we hope to have some progress to share as soon as possible. Please reach out if you have any specific questions, the team is always here to help. 

Many thanks, @Mez_BCNA ... is the Sydney Morning Herald article the same article as in my top post?  You can't read the SMH one online unless you buy a subscription .... or if someone with a subscription could either screen shot it, or save it as a PDF, that would be awesome.

As the RANZCR has already SAID that it should be mandated to advise patients of their risks if they have BC with dense breast tissue - why on earth are they waiting ANOTHER YEAR, discussing whether to or not?

They've already made their statement saying YES, it needs to be done - and THEY ARE THE EXPERTS.  So, it doesn't make sense - and it only delays more women finding out their own breasts may be their downfall - and many with a more advanced BC diagnosis, straight up, possibly even terminal.  :(

From last year on the ABC - another powerful article .... make sure you click on the 'drop down tags' too ..
https://www.abc.net.au/news/health/2023-05-18/breast-density-cancer-screening-explainer/102338008?fbclid=IwAR0YRHufOYxb11pxpj5eGd9usEXNG9ve2D_-X3zeLCPhqvNtPrsE-7K4e4w

@arpie, yes, I had a great gp to suggest I also get mammograms and ultrasounds yearly, and it certainly helped detect my early breast cancer in 2020.

However for me, despite early detection and aggressive treatment of the disease with surgery, chemo, radium and AIs, I have been unfortunate to have the disease progress to being metastatic 3 years after it was diagnosed. This happened despite being told I would be fine,  live till I am 90 and be just like others who never got bc.  

I think many forget that despite all the treatment, even if identified early and awareness of breast density, the cancer can still progress to being metastatic. So yes detect early and raise awareness about risk including density etc but we still need more research for treatments. 
 

Many thanks @Mez.   

The sooner BreastScreen NSW, Qld, Vic and NT and Tassie start notifying their clients of their breast density - the better!  It will mean earlier detection & possibly less invasive treatment that others have had to endure, due to late diagnosis.

@arpie I have added the new tag and also included it in this post. I have also shared this discussion with the Policy & Advocacy team.

Also useful for those who perhaps join the thread and are unsure about breast density, is the information on our website about breast density and screening https://www.bcna.org.au/resource-hub/articles/breast-density-and-screening/

My breast surgeon advised that breast tissue becomes less dense with age. Mine wasn’t considered dense at diagnosis but is now apparently almost transparent!! 

Gosh, @fufan and @Cath62 and @Julez1958 - how 'lucky' were you that your GPs or Mammogram people actually told you that you had Dense Breast tissue - but how neglectful that they didn't explain the very serious ramifications in that it makes BC detection almost non existent, tho it IS there, hidden in plain sight!   Cath62 in particular - what a wonderful GP to suggest you having ultrasound as well!

In my 20s I was told I had 'lumpy breasts' ... not sure if this related to the fact that a Dr found benign cysts ... of if it related to dense breast tissue ... 

It is SO important that every girl is aware of their breast density and the ramifications if they don't know - being later diagnosis than they should have ... and the scarier bit - possible straight up diagnosis for Mets :(   It is Medical negligence, at the least.

At my most recent MG - the radiographer told me that my boobs are now virtually clear (I am assuming it is the AIs that has changed that density?)

I had my first mammogram at 40. My GP told me I had dense breast tissue and suggested that I get an ultrasound with my mammograms. I did do this every 2 years until a few cysts were identified and then my gp suggested I have yearly mammogram and ultrasound. It was in these years scans my initial breast cancer was identified. While this was good the issue for me was that no one explained to me what dense breast tissue meant in terms of breast cancer risk. I think education around dense breast tissue and increased risk and how to reduce that risk is important.