What research should we be doing?
Hello BCNA community! This is my first post. I'm a scientist working on breast cancer and I was looking through some of the threads here and it strikes me that the issues we scientists think are the i...
Forum Discussion
Welcome @wingman (although it's a different welcome than the one I usually give). Everyone has gotten here before me with things that are important and my concerns are very similar:
- impact on mental and physical health from joining a support group such as this
- isolation (physical or mental) after diagnosis
- economic/social benefits of exercise/recovery programmes during treatment - should they be funded
- emotional/economic issues of cognitive impairment as a result of diagnosis/chemo - impact on getting back to work
- ongoing issues with physical recovery after treatment (general weakness, tiredness, cording, pn) and programmes to improve health - social/emotional/economic benefit of long-term programmes for physio, exercise and relaxation - should these be funded/heavily subsidised?
- better understanding of impact of hormone therapy - aches, vaginal dryness, etc - and treatments
- causes of recurrence
- better detection methods for both survivors and general public
- teaching our daughters (and sons) about surveillance
- acceptance of yourself as a survivor - too many studies seem to see it as just a sexual body image (having breasts) rather than the difficulty of accepting the whole package. Not having breast/s is just the obvious physical manifestation.
- some people have had wonderful bc nurses who have helped co-ordinate services and provide a lot of information when needed. This is not the case for most of us.