Forum Discussion

Lisa_BCNA's avatar
Lisa_BCNA
Member
7 years ago

Research opportunity

Hi all,

I wanted to let you know about a research project you may be interested in.

Researchers at the University of Melbourne and Birmingham are inviting you to participate in a study looking different treatment choices for low risk ductal carcinoma in situ (DCIS).

Please note: You do NOT have to have had a diagnosis of DCIS to participate in the research study.

Who can take part?
You can participate in this study if you:
  • Are over the age of 18 years
  • Are comfortable reading and writing in English
  • Have OR have not been diagnosed with breast cancer (the research team is interested in seeing what people diagnosed with breast cancer think and what people who have never had a breast cancer diagnosis think).

What does the study involve?
The researchers are inviting you to attend a short, face-to-face interview at the University of Melbourne or a convenient local venue. The session should take no more than 60 minutes and refreshments will be provided.

During the interview, you will be asked to fill in a questionnaire describing a number of imaginary scenarios relating to possible treatments for DCIS, such as surgery, radiotherapy or active monitoring (e.g. having regular scans, such as yearly mammograms). For each if the imaginary scenarios, the researchers will ask how you might decide what treatment(s) to have.

The aim of the research is to help women make better informed choices about treating DCIS in the future by exploring how different treatments might impact upon quality of life.

How do I find out more about the project?
If you would like to participate or would like more information about the project, please contact Hannah Bromley (Doctoral Research student) at the University of Melbourne by emailing hbromley@student.unimelb.edu.au.

For more information, please also read the Participant Information Statement.
dcis
diagnosis
research
  • Lodds's avatar
    Lodds
    Member
    7 years ago
    Hi do you need to be living in Victoria to participate in this?
  • Lisa_BCNA's avatar
    Lisa_BCNA
    Member
    7 years ago

    Hi all, thanks so much for your interesting in the project. It sounds like a really interesting, valuable piece of research. I will get in touch with Hannah now and get back to you asap!

  • deh's avatar
    deh
    Member
    7 years ago
    Hi everyone. Just letting you know it is possible to research interview with Hannah via Skype. Did mine today and very  glad to be part of this project.
  • three_tits's avatar
    three_tits
    Member
    7 years ago
    Dr Hannah B was quick and very warm in getting back to me  and I look forward to the experience. [ the interview scheduled under two weeks from my email}I yes I do live in the greater Melbourne area. I think it was mentioned that in  considering this and talking to someone can revisit unwanted emotions  . I am a believer in talking about emotions with a person you trust  and yes it might make you cry, and for some reason applying for participating of research it has made me revisit the first 6 months of diagnosis, eg did I need a mastectomy after  the first surgery etc etc..., but there is no crime in crying.
    I am 6 months post mastectomy after  a month earlier a breast conserving op  and most of the time i think i am learning to accept the loss of grief accompanied with the not very nice physical sensations of the mastectomy, mostly inmproving , however revisiting the possible options rears my grief that i did not want the mastectomy  and would have rathered  tryng radiotherapy. 
    Yes, most of the time i feel fortunate the breast screening helped the early detection of breast  cancer, other times the honesty that it is not easy raises its head. Being honest and real is very important to me and that in the long run helps me very much to be resilient xxxx  it feels good to be able to participate in research , so i hope you other ladies interstate get the chance xxx It feels good to have this forum too so thanks xxx
  • June1952's avatar
    June1952
    Member
    7 years ago
    Thank you to everyone.  Research is very important and I do believe that putting one's hand up for research sort of gives us a feeling that we are helping another lady in the future.
    Dr Hannah is a lovely lady and I know she will appreciate your assistance.