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Lisa_BCNA's avatar
Lisa_BCNA
Member
7 years ago

Research opportunity

Hi all,

I wanted to let you know about a research project you may be interested in.

Researchers at the University of Melbourne and Birmingham are inviting you to participate in a study looking different treatment choices for low risk ductal carcinoma in situ (DCIS).

Please note: You do NOT have to have had a diagnosis of DCIS to participate in the research study.

Who can take part?
You can participate in this study if you:
  • Are over the age of 18 years
  • Are comfortable reading and writing in English
  • Have OR have not been diagnosed with breast cancer (the research team is interested in seeing what people diagnosed with breast cancer think and what people who have never had a breast cancer diagnosis think).

What does the study involve?
The researchers are inviting you to attend a short, face-to-face interview at the University of Melbourne or a convenient local venue. The session should take no more than 60 minutes and refreshments will be provided.

During the interview, you will be asked to fill in a questionnaire describing a number of imaginary scenarios relating to possible treatments for DCIS, such as surgery, radiotherapy or active monitoring (e.g. having regular scans, such as yearly mammograms). For each if the imaginary scenarios, the researchers will ask how you might decide what treatment(s) to have.

The aim of the research is to help women make better informed choices about treating DCIS in the future by exploring how different treatments might impact upon quality of life.

How do I find out more about the project?
If you would like to participate or would like more information about the project, please contact Hannah Bromley (Doctoral Research student) at the University of Melbourne by emailing hbromley@student.unimelb.edu.au.

For more information, please also read the Participant Information Statement.
dcis
diagnosis
research

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  • June1952's avatar
    June1952
    Member
    7 years ago

    Hello ladies

    I have been advised I am not allowed to put a separate posting on this subject so I apologize for the time delay.

    I spent an interesting hour or so with Dr Hannah as part of the current research project titled “Valuing the benefits and risks associated with treating low risk breast conditions”.  This is part of a joint PhD programme between the Universities of Melbourne (Australia) and Birmingham (UK).

    This is your opportunity to share your views with breast cancer researchers. It is important that women’s preferences for treatments are included in the decision-making process when it comes to planning breast cancer services.

    Dr Hannah would love to hear from any other ladies, with or without a history of breast cancer, who would like to participate in the research.  Also, your breast cancer does not have to have been a low risk cancer.  Perhaps you have a friend who would be prepared to take part as well.

    Dr Hannah is prepared to meet rural and regional ladies outside the Melbourne metropolitan area.

    Please take this opportunity to have a say and make sure ladies who have to follow us down the cancer path are given the same or better cancer services.

  • June1952's avatar
    June1952
    Member
    7 years ago
    I spent an interesting hour or so with Dr Hannah today and will add a posting later.
    I encourage ladies, with or without BC experience, to take part.
  • Lisa_BCNA's avatar
    Lisa_BCNA
    Member
    7 years ago

    Thanks for your messages @Summerhill38 and @Lisa50. It is great to hear you will be taking part in the study @Summerhill38!

    @Lisa50, as @Summerhill38 mentioned, you just need to email Hannah Bromley at hbromley@student.unimelb.edu.au. Hannah will give you information about what is involved and arrange a time for your interview.

  • June1952's avatar
    June1952
    Member
    7 years ago
    You contact hbromley@student.unimelb.edu.au in the first instance and Hannah will take it from there.
    Where are you located ?.

  • June1952's avatar
    June1952
    Member
    7 years ago
    Thank you Lisa.
    Has anyone taken part in this research ?
    I think any research is important for others coming behind us so I have made contact and will be taking part.
    The research team is happy to travel outside Melbourne which is fantastic as it means regional and rural ladies may be able to share their opinions.