Home Now what? The highs and lows of survivorship



Warning

Im sorry in advance, I'm really struggling tonight. My question might he disturbing so I warn anyone if I come on too much. So my question is, if refusing all treatment and live for as happy and as fot how long, is that considered as selfish or worse still SI?? I'm sorry it's so heavy, but I feel heavy with this option 

Comments

  • AfraserAfraser MelbourneMember Posts: 4,021
    In the final analysis, everyone has the right to live as you wish. As far as is humanly possible, you don’t want to realise you have made a big mistake far too late. With the benefit of hindsight (and no guarantees about the future) my time during treatment is as nothing to the ten years (almost) I have had since. All the more precious as I might not have had them. Think of treatment as an investment in the future. You spent far more time at school! 
  • CoraCora Member Posts: 104
    Yeah, sounds good
     Will consider. Thank you
  • iserbrowniserbrown Regional VictoriaMember Posts: 5,206
    @cora

    Sounds like you would benefit from counselling 
    Try the BCNA Helpline 

    https://www.bcna.org.au/about-us/contact-us/contact-us/

  • Cath62Cath62 Brisbane Member Posts: 932
    Hi @Cora, how are you today?

     It's a ride with emotions and that's normal. However not having treatment is a really big thing? You don't know how treatment will go. You may not have side effects and then live till your 100.

    Maybe consider counselling please. The BCNA helpline is good but you could also take to a private counselling service but pick one that deals with breast cancer. 
  • Mez_BCNAMez_BCNA VictoriaAdministrator, Staff, Member, Moderator Posts: 408
    Hi @Cora, I have reached out to you via reply email and hope that the resources suggested provide you with some direction and support. 
  • FufanFufan Central Coast NSWMember Posts: 26
    Hi @Cora, and I hope you are feeling ok today.  The suggestions to get counselling are very good advice.  In any case, don’t make your decision too quickly: a week or two may soften your perspective and quite possibly won’t affect the outcome.
    Can I just offer an insight from my daughter, when I was in the throes of chemo?  She thought that maybe it was a bit like childbirth: pretty overwhelming at the time, but quickly forgotten in the greater scheme of things. And, although my hair is so slow to grow, and I still find losing my fingernails very frustrating, she was basically right.  Just an observation.  Take input where you find it, but the decision must be yours. Bon chance!
  • Julez1958Julez1958 SydneyMember Posts: 608
    Hi @Cora
    None of this is easy that’s for sure.
    I had faith in my medical team and followed all their recommendations.
    Mastectomy , radiotherapy and now hormone tablets for at least 5 years.
    I didn’t have to have chemotherapy but would have had it if recommended.
    I think the perspective from @Fufan above is a good one - I am now 2 years down the track from my diagnosis and the terror and anxiety I felt at the time is a receding memory.
    I am having some side effects from the hormone tablets but am determined to do all I can to continue with them as I want to give myself the best chance of survival.
    Take care.
    🌺
  • GenKGenK Sydney Member Posts: 65
    It’s your life and choice. I have had loved ones and family who have had cancer, some chose full treatment, some palliative treatment to improve quality of life without aiming for cure, and some chose no treatment. My mother is going for partial treatment, and I understand her decision and accept it, my Nana chose no treatment for melanoma and passed from other causes before it consumed her, my godmother chose full treatment for bowel cancer and still died from it, my peer died at 17 from bone and lung cancer and only had palliative chemo. I guess my point is are you comfortable with your decision? It’s your body and your life, and choosing any or no treatment is your choice and isn’t selfish regardless of that choice. I know in certain circumstances I’d choose no treatment or partial treatment, despite having a child I love dearly who has basically no other blood family. 

    Are you comfortable that your decision feels true to yourself? Would it be helpful discussing your decision and options with a counsellor? If happy with your decision, would you prefer support in helping you share that decision with loved ones? 
    It’s not selfish to do what you feel is best for you, in fact as hard as it can be it’s actually a good thing. Hth 🌺
  • CoraCora Member Posts: 104
    Thankyou for these words of wisdom. There's more, but can't discuss here. I'm on FB
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