Hi all and thank you to those who welcomed me! I was waiting for some news on my next treatment before I posted. I was disappointed to find out I cannot have any more radiation but glad the team came up with Provera as an alternative to last resort chemo, even though I have just had a year on CDK inhibitors thanks to compassionate access from Lilly.
But to start at the beginning I am lucky it is 12 years since I was diagnosed with invasive, oestrogen +, lobular Ca of the left breast that was treated with a mastectomy, lymphatic clearance and chemo followed by 5 years of Tamoxifen. A recurrence around my brachial plexus was difficult to diagnose but eventually treated with a radical course of radiation after a year of AIs. The radiation worked well on the brachial plexus lesion but by 2017 there was local tumour recurrence on my chest wall. This has been treated with further AIs, Everolimus which may have contributed to a nasty pneumonia, 15 months of Capecitabine, 3 months of Faslodex I funded, followed by Abraxane, Eribulin, some local radiation and in the last year Faslodex plus Ribociclib, then Abemaciclib. I have some bony mets to my spine and right arm but luckily no progression to major organs so far. The tumours on my chest wall are unsightly and uncomfortable/painful but not immediately life threatening.
I can only be grateful for all the treatment I have received although some of it has been hard work and I have developed some cardiac and lung issues. I am hoping for a few years yet as I love my life (I am about to turn 75). I am well supported with family and friends but late last year a sister/best friend moved interstate to be with her daughter and along with Covid that has left me feeling more isolated. Two daughters are supportive but I spare them all the details of my cancer and would love to have more people I can chat to about my health issues and share information with - as one doesn’t want to bore friends and family too much! Which is why I am happy to join this group but would be even happier if it were possible to be linked in to someone local to 3765.