Getting ready for Chemo, any advice?
Sabina33
Member Posts: 6 ✭
Hi beautiful women, I’m new here, I’m a 33yo mum with 3 kids, recently diagnosed with hormone +, stage 3, grade 3. Had a double mastectomy and lymph nodes removed on the 30/3, going to see the oncologist next week and start Chemo. Would love some advice on preparing for this, recovery from surgery has been hard but chemo is more daunting to me...
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Welcome! Chemo is always a daunting thought but as @jennyss says, reactions can be so widely different that it’s hard to know what any one individual will experience. Your oncologist will outline what treatment is recommended. Mine gave me a sheet of information on each therapy - this was very helpful, particularly to refer back to later. Remember that lists of possible side effects are just that - a list of what’s been experienced by a large number of people. You won’t get all of them! Losing your hair is likely so have some thought whether you want try cold cap. It too varies in effectiveness.
Many patients suffer fatigue, but not all - I had none and worked throughout. Similarly nausea - drugs may help a lot so don’t suffer in silence but again, I had none. Most people start to recognise a pattern of good and not so good days and can plan accordingly. Remember chemo is finite, take one day at a time and count down the number of treatments! Best wishes.
I finished chemo last year.
Everyone reacts differently to chemotherapy, as everyone’s doses aren’t the same, I had dense dose AC every 2 weeks for 8 weeks, then 12 weekly pactlitaxel. I had quite a few side affects, but by telling you this you have a lot of support with your oncologist, and your oncologist nurse, to try and get the nest dose right.
Dont be afraid to use the 24 hr hotline number you will be given if you’re not feeling well, as they are there to advise you and help you through, just remember you are never alone.
Be very up front with your oncologist, as they are there to try and make chemotherapy tolerable for you.
Planning Ahead....
Cook and freeze some meals , soups are really good as well.
Have hospital grade Sustagen on stand by just in case you don’t feel like eating, at least you can drink some nutrients.
You may get a metallic taste in your mouth, so have some cordial in the cupboard ready as you will need to drink around 3 litres a day of fluids.
You may get constipated so have some coloxyl with senna on hand, I took 2 every night and had no constipation issues.
Take your temperature on a regular basis.
Have an overnight bag packed just incase you have hospital visits, with all the essentials, ( as I found out the hard way when husband packed one for me lol...)
Let people help if they offer.
You will get through this , we are here for you with any questions you might have.
Stay positive, listen to your body and rest when it tells you to.
Try and stay as active as you can during chemo, short walks around the yard, keep,hydrated, you will work out when you best and bad days are going to be.
We are here for you , sending hugs xx
I am also practicing the acceptance of help and will take up some offers of meals from friends for around my treatments, thanks for being here and sharing x
Sorry you have had to join this club. I was 34 when diagnosed and pretty similar stage and grade....that's over 6 years ago now! Chemo was definitely the hardest for me out of all the treatments. My tips are....
Take your anti nausea meds
Rest Rest Rest even if you're feeling on top of the world - it's the steroids that are lying to you
Paint your nails & toenails a dark colour - I honestly believe in this as I painted my nails and forgot to paint my toenails and a month after finishing chemo all my toenails fell off
Drink tonnes of fluids to flush the chemo out after you've had it
Don't stress if you don't eat or drink as healthy as you thought you might (I thought this way)....eat and drink what makes you happy, keeps you hydrated, energised etc I lived on Savoy biscuits 24 hours of the day and always ate a bucket of hot chips when I was having my chemo
Have you thought about cutting your hair shorter?
Absolutely accept ALL of the help! Sometimes it's hard but a lot of your friends and family might not know what to say but they can show you by the way they help
Goodluck my friend
I know it sounds weird , driving to my very first chemotherapy session I wasn’t nervous at all, was singing in the car to some favourite music, my husband was driving me, he sort of looked at me are you ok lol.....
Something no one has mentioned, have you thought about having a port?
The reason I ask is that I didn’t, and now if I need blood taken, it’s a nightmare finding my veins, as I can only use one arm due to having all lymph nodes removed from surgery side.
I had a Pic line put in after my third treatment, but that only lasted in my arm for 3 weeks as I ended up with blood clots in my arm, so it was removed, other ladies that had a Port put in had no issues. So that’s something I would ask your oncologist.
Maybe it was just my bad luck, but having a Pic line there was always a risk of blood clots, but it doesn’t happen to everyone.
Don't be afraid of chemotherapy, the nurses are so lovely and they will help,you through it all.
Take a good book to read during chemotherapy, I had access to a tv to watch, listen to,your favourite music, the last couple of dose dense AC I slept through the whole thing.
If husband or someone else sits with you whilst having treatment, get them to take their own snacks or lunch depending on what time you have your treatment, and if you prefer to take your own snacks do so.
Take plenty of fluids with you during chemotherapy.
Be positive.
Big hugs xx
Good luck with your treatment.
Love to you all xxx
My main recommendation would be to try to keep exercising during the chemo. Initially, I felt I could hardly get off the couch but once I got going, it really helped me to feel better and like i was human again. Walking in the parks was beautiful but I particularly came to love my bicycle. I'd read that it was good to exercise on the day of chemo to get your circulation and metabolism all activated and ready to maximally soak up the chemo so I'd try to fit in a 30-45 minute ride before going to the hospital. As my chemo was neoadjuvant (before surgery), I was able to monitor its effects upon my tumour and at the end of the first three months, the tumour was no longer palpable which was amazing and by the end of the six months the MRI was normal. My treatment was fantastic but I definitely think that the exercise played a big part. It will feel like a very long haul at the time but hang in there and hopefully before long it will all be in your rear vision mirror. Fiona x
I had a 12 week course of paclitaxel also known as Taxol which can give you neuropathy (numbness, nerve damage) in your hands and feet so I stuck my hands and feet in ice during treatment, also helped with keeping my nails. There's a whole thread on here,with photos, search 'ice therapy". Might be hard to achieve if you don't have a helper going to chemo with you but I hope you can take someone with you.
Take all the help you are offered, exercise and rest when your body tells you too.And what is about hot chips?? I also had cravings for them @Katy_Sodapop
Best wishes and take care x
poodlejules I am having 12 weeks of Taxol after 4 doses of AC, will definitely look into the ice, thanks for your advise glad you had success with your nails, what a journey!