Thanks Berry& Sister.. invaluable clip.. more expert education please.. is there one on why imaging for early recurrence is avoided because of harms.. I’m not yet convinced of the argument of false positives and the harm is the onc is compelled to deliver treatment that is harmful based on the false reading. in my case, false mammogram negative readings produced a harmful outcome by missed second tumour.. ( I’m becoming boring in this).. Anyone found an equally best knowledge video on the restrictions of imaging for early detection of recurrence. First interview very happy with my new private onc. Able to have a conversation. I asked about PET.. that’s when the argument re harms came up. Asked about MRI and blood biomarkers . Only women with breast tissue have this.. Having no bosoms ive reduced risk. The Family Adult geneticist also told me this. But, my new onc suggests further genetic testing.. which I’d like.. Also off Prolia as my bone density is above average for my age. Bone Density, is tested two years after being in AIs unless you’re osteoporotic from the beginning. At last, I think I have an onc who will engage my personal history . Thanks to all.. Our collective knowledge is supburb. xoxo
On zoladex injections plus femara AI, for a few weeks now post chemo and rad for ILC. Onc has suggested removing ovaries (no longer zoladex every month). GP seemed shocked at the idea though. Anyone been through similar?
To be honest, I would have them removed particularly knowing that it is a place that ILC can recur. I have asked on a couple of occasions about having mine removed but the medical folk are not keen as I'm menopausal.
I am having my ovaries removed in a couple of weeks. I had ILC 7 years ago and it came back this year and I have had a double mastectomy and am on AIs. I am post menopausal now. Given I have had the ILC come back I am very nervous about it metastasizing even though nothing showed up in my lymph nodes. None of drs suggested that I have my ovaries removed but once I understood that it is the place ILC commonly metastases I decided to seek the opinion of a gynaecological oncologist. End result is I am having them removed to reduce any risk and for peace of mind. My GP and medical oncologist have been very supportive of this decision.
I must admit, I was pondering the voluntary removal of ovaries as well, being post menopausal & that they appear to be 'turning against me'! Sadly, It appears ILC's have a greater chance of going to mets ... tho we obviously hope not. I didn't realise that the ovaries is one of the first places it can go to! Will it be keyhole surgery?
Comments
for early recurrence is avoided because of harms.. I’m not yet convinced of the argument of false positives
and the harm is the onc is compelled to deliver treatment that is harmful based on the false reading.
in my case, false mammogram negative readings produced a harmful outcome by missed second tumour..
( I’m becoming boring in this).. Anyone found an equally best knowledge video on the restrictions
of imaging for early detection of recurrence. First interview very happy with my new private onc.
Able to have a conversation. I asked about PET.. that’s when the argument re harms came up.
Asked about MRI and blood biomarkers . Only women with breast tissue have this.. Having no bosoms
ive reduced risk. The Family Adult geneticist also told me this. But, my new onc suggests further
genetic testing.. which I’d like.. Also off Prolia as my bone density is above average for my age.
Bone Density, is tested two years after being in AIs unless you’re osteoporotic from the beginning.
At last, I think I have an onc who will engage my personal history . Thanks to all..
Our collective knowledge is supburb. xoxo
All the best for your procedure xxx