Triple Negative Metastatic Lung
Mabel
✭Member Posts: 3 ✭
I was diagnosed with triple negative breast cancer stage three in Match 2017. I underwent chemo, a lumpectomy and radiation followed by a course of captectabine. I had a reoccurrence in April this year and I was diagnosed stage four with spread to lymph nodes in the mediastinum and right pleural. The cancer has also invaded the skin of my right breast which has resulted in a painful skin condition. I have had 7 chemo’s and self funded Keytruda (immunotherapy). The Ketruyda made me very unwell and seemed to stimulate disease progression. I now have lymphangitis carcinomatosis in my left lung and a pleural effusion in the right. Have had effusion drained twice but it comes straight back. I also now have a liver met. I am on a high steroid dose which keeps me mobile short distances but some days I require oxygen which I have at home. I have just finished my first round of a combo of avastin and a chemo drug navelbine. I am 42 years old and I have two young children. Although recently place under palliative care I will never give up and my Oncoligist is on board with this. I am looking to connect with anyone who can provide me with a positive story in a similar situation as some days I find it hard to find hope which is what has kept me going through all of my treatments. Thank you.
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Comments
Thinking of you and your family at this time xx
so very sorry to have to welcome you to our corner of the world,there really are no words to write that explains what you have been, and are going through and with two beautiful young children to care for as well, I dont have your diagnosis, but have stage 4 with mets to my liver and spine and now it would appear in my chest wall and belly, but I am 62 and retired so a totally different situation, I can only hope that you have plenty of support with you children and also around the house,you dont saywhat state you are in as each state has different ways of helping, do you have a dedicated McGrath Breast Care Nurse to help you, just look on the website and see if there is one in your area,do you have community support,I am sure there are lots of lovely people who would love to help you.
You have the best attitude in terms of outlook and so pleased that your oncologist is taking such good care of you, its a very long hard road we travel with this dreadful disease, but just remember we are with you, we get it, please if you havent already ring the bcna 1800 number and ask to make an appointment with Dr.Carrie Lethborg, she is a very special and compassionate lady whose speciality is cancer, bcna have her services available for metastatic people and their families, she will call you in the privacy of your own home at a time suitable for you,(no charge) and have a chat with you, she gets it!I have spoken several times with her and cannot speak highly enough of her, just google her name and you will find out about her. There is also a foundation called mummys wish which may be able to help you as well.
I just wish I could sit with you have a cuppa and give you a big hug, but I cannot so will have to send lots of hugs via here,if you want to send me a private message thats okay if there is anything you want to discuss, I am old enough to be your mum, my own son is 46 and my grandaughter 17, yes I know I was a very young mum,please, take all the help you are offered, now is not the time to try and be too independent, look after those beautiful children of yours and keep in touch.
wendy55
I know how you feel and also refuse to ever give up.