Not diagnosed but awaiting

Twiggy34B
Twiggy34B Member Posts: 37
edited May 2018 in General discussion
3 months ago lesion on right breast was picked up incidently on Lung CT scan for my then illness i had. I had ultrasound with radiologist which radiologist said was probably cyst bur did FNA after i asked for it due to my mother having very early stages breast cancer in her 30s and her aunts died of them 1 in mid 30s and one over 60. My cousin on my fathers side died in early 40s mid december last year as it spread to her brain from breast. The FNA result 3 months ago came back inconclusive with bloody cells so was referred to breast surgeon who recommended follow up ultrasound/mammogram in 3 months time. That time came 2 days ago on 17th May in morning. Ultrasound picked up 5 new tumors in right breast along side with existing 6th tumor that was tested inconclusive. My left had 2 new ones one near armpit and one on side not so far from it towards bottom of breast. Radiologist checks with doc and they said mammogram to be done so had it done straight up. Next morning i already had docs appt for something else but she already had report from mammogram and one was already sent to breast surgeon. Mammo report confirmed all 9 are solid tumors and suspects it to be fibroadenomas and i have to wait for what doctor surgeons recommendations which is Tuesday afternoon. (Im 34 mum of 4 and looking for anyone that had similar issue and all was fine? If i am on wrong page for this sort of thing please accept my appologies and let me know which direction or page i should go on? 
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Comments

  • Sister
    Sister Member Posts: 4,960
    You're not on the wrong page. Unfortunately, at the moment it's just waiting to see what the surgeon says which is a terrible time.  Try not to think about it too much although the that's easier said than done. You may get someone else responding who has had a similar experience but in the meantime, welcome.
  • Twiggy34B
    Twiggy34B Member Posts: 37
    Thank you Sister, 
    Yes it is unfortunate to wait for outcome but cant help but feel nervous which is very stupid and silly. I just need to wait for answer. I was already a little nervous 3 months back when biospy result was inconclusive with "bloody cells" so i thought i did well not to bother being nervous for 3 months until now. Silly I know and should try be positive until i know more. 

    Thanks
  • kmakm
    kmakm Member Posts: 7,974
    It is definitely not stupid or silly to feel nervous about your health. And completely understandable given the uncertain nature of what's going on so far. Hang in there as best you can, try to stay in the moment as much as possible and don't cross any bridges until you come to them. Big hugs, K xox
  • Sister
    Sister Member Posts: 4,960
    edited May 2018
    @Twiggy34B I have friends coming over today.  The last time I saw them all was for a Christmas do the weekend between my recall appointment and diagnosis appointment.  I have almost no memory of that day and afterwards, when they found out about what was going on, all of them knew that I had been "somewhere else".  So, completely understandable - I just don't know how you've managed 3 months.
  • Twiggy34B
    Twiggy34B Member Posts: 37
    Thank you kmakm. 


  • Twiggy34B
    Twiggy34B Member Posts: 37
    Sister, must be nice to have friends come over today to see you today. I can  sort of understand why you would have no memory of that day and be elsewhere. Hope you have a lovely day. 

    The 3 months didnt bother me to much because I thought inconclusive biopsy wasnt a concern at all thinking well least it didnt come back cancer but it didnt come back begnin but i just got busy thinking 3 months a long wait and i have 4 sons youngest is turning 3 next month and figured that the tumor be gone by then. Hubby knows and he is a little worried but i assured him all can be begnin and nothing to worry about. He had aneurysm in his main aorta heart and inoperable so cant afford to stress him out hence why im on here. 
  • kmakm
    kmakm Member Posts: 7,974
    This is a very good place to stress vent. We all get it. I don't think our families know how much this forum spares them!
  • Twiggy34B
    Twiggy34B Member Posts: 37
    edited May 2018
    I Agree, if it wasnt for me discovering this page I wouldnt be as calm as i am and quiet about it still. I had a little cry today thinking what a crappy waiting game but then i thought of those battling the cancer such as yourself and Sister (i read your profiles) and I just cant imagine myself in that position i dont know how anyone can do it let alone the journey. 
  • kmakm
    kmakm Member Posts: 7,974
    If I think about it all I burst into tears. You have to break it down. One day at a time, one foot in front of the other.
  • arpie
    arpie Member Posts: 7,521

    @Twiggy34B
    I am SO sorry that you have to play the 'waiting game'.  It is Such a stressful and emotional time, specially now that it is your 2nd 'wait' ...... everyone is always  nervous - hopeful of the best outcome, but aware also that it may not be the outcome we desire.

    My lump was initially found in Nov - but I'd had a couple of 'cyst scares' in previous years, so when the ultrasound in early Dec came back as inconclusive  & recommended a biopsy (the same day Mammogram didn't even 'see it', even tho the Dr had shown the exact location!) - I wasn't too worried & continued to prepare for Xmas etc.  The biopsy wasn't til between Xmas & New Year - but I'd already convinced myself it was only cysts (cos that's what the Ultrasound pics looked like to me!!  LOL)  So, I had a reasonably 'OK' Xmas & New Year, doing what I normally do, without too much 'fear'. So it was a bit of a shock on Jan 5th when I had a call from my GP to pop in (I'd already made an appt anyway!) and I could see from the look on her face that is wasn't the result I wanted.  And so began the roller coaster ride, that BC is.

    Having a little cry (or a big one) is totally acceptable and expected - even therapeutic!  I am pretty sure we all have - more than once. There will be moments when something may 'set you off' - I've dropped my bundle a few times ..... 

    Such a shame that your hubby has a grotty condition as well .... my thoughts are with you.

    As @kmakm  says - One day at a time & one foot in front of the other ..... It Is What It Is ... we just have to roll with the punches, rely on the expertise of the specialists & pray for a good outcome.  (not that I am overly religious either!) 

    Take care, all the best for your results - I'll be thinking of you.
  • Twiggy34B
    Twiggy34B Member Posts: 37


    kmakm said:

    If I think about it all I burst into tears. You have to break it down. One day at a time, one foot in front of the other.

    One day at a time sounds nice. Havent had that in a while but intend to try doing just that until I know what is going on. 

  • Twiggy34B
    Twiggy34B Member Posts: 37
    Arpie, sorry to jear you had to receive news that is not desired. Especially start to the new year. I hope the journey is not horrible for you. 

    Same for you kmakm. Hope it hasnt been horrible. 

    I just want Tuesday to hurry up so i can plan the days deal with kids. Its the longest weekend of my life atm. I am sure lots have felt like that no doubt. 


    I am new to this network and noticed you can tage a name? How do you do that? 
  • kmakm
    kmakm Member Posts: 7,974
    Put an @ in front of the person's name and they'll be notified. You don't have to do it ifcthe person started the thread. K xox
  • Twiggy34B
    Twiggy34B Member Posts: 37
    @kmakm

    Thank you! 
  • primek
    primek Member Posts: 5,392
    I believe anyone in your position would be anxious and worried even without the family history. It might be worth discussing seeing a genetic counsellor regardless of outcome so you know your risks. First thing you do is start mapping family tree with those who have had any cancer and ages diagnosed (or approx). It helps to know that background and determines if appropriate for testing or not.
    I have met a couple of women with your condition who have had surgery and no further issues. However the whole surgical process and waiting was very traumatic for them. 
    I hope things move rapidly for you so you have a treatment plan soon. Kath x