5 years ago

ReenieBabe
ReenieBabe Member Posts: 29
edited December 2013 in Day to day

Hi Everyone

On December 23, 2013 I reached a five-year milestone since my diagnosis of IBC.  I was not given a good prognosis - my doctor now says he didn't think I would be still here to celebrate.

Never say never, what a journey it has been.

Corinne

Brisbane

Comments

  • Robyn W
    Robyn W Member Posts: 1,932 ✭
    edited March 2015
    These are the stories that we need on this network!Five years ,how fantastic for you:) I would imagine though that you have had a very tough and stressful 5 years.I would like to wish you good health as we approach 2014,and hope that you have nothing but good things,peace and happiness in the coming year. Love and best wishes xoxoxo. Robyn.
  • Deanne
    Deanne Member Posts: 2,163 ✭
    edited March 2015
    Thank-you for sharing your good news with us. As Robyn says these are the stories we need to hear, especially for those in shock and fear with a new diagnosis.
    Best wishes for a fantastic 2014 and beyond. Deanne xx
  • Deanne
    Deanne Member Posts: 2,163 ✭
    edited March 2015
    Thank-you for sharing your good news with us. As Robyn says these are the stories we need to hear, especially for those in shock and fear with a new diagnosis.
    Best wishes for a fantastic 2014 and beyond. Deanne xx
  • Bearteggie
    Bearteggie Member Posts: 326
    edited March 2015

    Hi Corinne

    Thank you for sharing your wonderful news with us and congratulations. I am inspired and full of hope now after reading this.  I was told yesterday that I had TNBC and that it is more likely  to recur than other types.  So to hear your wonderful story couldn't be more timely.

    I wish you a wonderful, happy and healthy New Year.

    Joy xx

     

  • hillburn
    hillburn Member Posts: 7 ✭
    edited March 2015

    Hi Corine

    I was diagnosed with IBC, already in lympth nodes, Her2 +, Stage 3+ on 5 Sept 2012, the fight was on and have been through the toughest of treatment since then.  My last Herceptin was yesterday and success so far.  My heart and body have responded beyond my expectations. There is so little research on IBC on what happens now my "lifeline" ie friend in Herceptin has come to an end, I feel obvious apprehension and fear as to the future.  Your message has given me hope just when I needed it.  Love and well wishes for 2014 and many years to come. Never say Never.

    Kind regards

    Hillburn

  • adean
    adean Member Posts: 1,036 ✭
    edited March 2015
    We all wish for the damn 5 years, you must feel elated, good health for 2014. Regards adean
  • ReenieBabe
    ReenieBabe Member Posts: 29
    edited March 2015

    Thanks everyone for your good wishes.

    Hillburn - we sound very similar in our dianosis - yes treatment was severe but there is a light at the end of the tunnel and we meet such wonderful people along the way.  I finished Herceptin and then was put onto a drug trial - when all drugs and treatment finished it was like - 'what now'.  But after a while you realise that life without treatment does exists and being confident in your body and moving on to the things life has to offer is so very important.

    I really wish you all the best as you continue your journeys in life.  If you ever want a chat - I live in Brisbane and would be happy to meet for a cuppa or contact me via the forum.

    Luv and a happy new year to all!

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