BCNA Adelaide Conference 3 & 4 August 2019

Giovanna_BCNAGiovanna_BCNA Administrator, Staff, Member, Moderator Posts: 892

Adelaide Conference

BCNA will be coming to Adelaide on the weekend of 3 and 4 August.  We are planning to run a series of workshops over the weekend and a special event on Saturday evening. At BCNA we strive to bring you information that is up to date and relevant.  Therefore, we would love to hear from you to understand what is important so that we can deliver a program that is packed with the information and supports you need.


Comments

  • SisterSister Adelaide Hills, SAMember Posts: 3,627
    Sounds brilliant @Giovanna_BCNA ; Will put my thinking cap on (and mark my calendar)!
  • RomlaRomla AdelaideMember Posts: 1,729
  • RomlaRomla AdelaideMember Posts: 1,729
    Oh no - I’m in Cairns for a month during that time.Please can papers be available or audio ?
  • SisterSister Adelaide Hills, SAMember Posts: 3,627
    Lucky you @romla.
  • RomlaRomla AdelaideMember Posts: 1,729
    Last big family holiday @Sister helped by unbelievably cheap airfares
  • MvBMvB Member Posts: 30
    Thanks @Giovanna_BCNA ; for the heads up on this and the request for input.  Just want to build on and support the amazing list from @Sister which I've copied below...my comments in brackets & capitals.  I am not shouting...just looks like it! :wink:

    • We hear a lot about new treatments that are on the horizon in the media, but what is really emerging as possible bc treatments, in particular for recurrences and Stage 4 treatment. (YES!  WE HEAR THAT BC IS NOW BETTER UNDERSTOOD AS A "CHRONIC DISEASE"...REALLY?  LET'S TEST THAT!  WHAT ABOUT IMMUNOTHERAPY?https://www.cancerresearch.org/immunotherapy/cancer-types/breast-cancer )
    • Current knowledge about BC sub-types and treatment. (YES PLEASE.  MUCH CONFUSION ABOUT LUMINAL A  & B, KI-67, ETC AND MEASURES OF "SUCCESS" - 5, 10, 20 YR - .SURVIVAL OR DISEASE FREE)
    • Lymphoedema and cording - best practice treatment and management (I've read about new mapping techniques for lymphoedema) (YES)
    • Sexual health (YES.  WHAT DO BC TREATMENTS CAUSE THAT MAY HAVE BEEN EXPECTED ANYWAY WITH MENOPAUSE?)
    • Adjusting to the new normal (limits on activity, memory loss, other peoples reactions, and own perceptions) (YES)
    • Coping with side effects of treatment (YES)
    • Supplements/treatments to counteract side effects of Hormone Therapy (YES - ALTHOUGH MY OWN EXPERIENCE HAS BEEN TIME AND EXERCISE HELPS...JUST ME?)
    • Genetics (YES! INCLUDING THE DIFFERENCE BETWEEN TUMOUR GENOTYPING E.G. ONCOTYPE DX AND WHY THIS COST IS NOT SUPPORTED BY MEDICARE OR PRIVATE FUNDS, AND BROADER GENETIC TESTING WHICH IS SUPPORTED TO A LIMITED DEGREE - 7 GENES)
    • Prioritising self-care (to steal a discussion title) and exercise/nutrition (YES)
    • Effective mindfulness/meditation (YES. WISH I WAS BETTER AT THIS!)
    • What financial assistance is available for ongoing treatment, ie. subsidies, health care plans, etc. (THE GAP BETWEEN MEDICARE AND COSTS IS GROWING AND IF INCURRED OUTSIDE OF HOSPITAL ADMISSION IS NOT COVERED BY PRIVATE FUNDS.  THE TAX OFFSET FOR EXCESS MEDICAL COSTS IS NO LONGER AVAILABLE - QUIETLY REMOVED BY RECENT GOVT - SO WHO IS KEEPING TRACK OF THE FINANCIAL BURDENS IMPOSED ON THOSE OF US ON THE CANCER TREADMILL)
    • I'm not sure how it would fit but from reading threads, it seems that too many people are having the limits of living after active treatment dismissed.  A discussion, perhaps? (AGREE).
      I probably can't get to Adelaide in August.  Hope it goes very well. Cheers MvB
  • Shellshocked2018_Shellshocked2018_ Fleurieu Peninsula , SAMember Posts: 102
    Hopefully if I’m well enough I would like to attend.
    Shall put in my diary.
    Will put thinking cap on.
    Any idea of venue?
  • iserbrowniserbrown Regional VictoriaMember Posts: 3,243
    Not sure if you have a theme planned 

    Suggest a topic around social media, google et cetera to direct users to correct information
     
  • AlpalAlpal Member Posts: 185
    A session on breast reconstruction would be great - there are many options today, and new technologies emerging which have increased our choices.
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