Wondering about Palbociclib negotiations.

Leapfrog

Hi everyone, I'm on a trial of Palbociclib and Letrozole, which is great because I'm fortunate enough to have free access to Palbo.  However, since Ribociclib was accepted onto the PBS but Pfizer rejected the Government's price on Palbociclib, I haven't heard anything about whether negotiations are ongoing or what the process is for Pfizer to have Palbociclib accepted onto the PBS.  I might well have missed something in the media as I don't watch TV or read newspapers. I usually receive my information from the BCNA it's but I've seen nothing.  Does anyone know anything about this?

Stonea88

Are you losing your hair is it thinning?

iserbrown

@Riki_BCNA - is there an update on this drug?

Riki_BCNA

Hello @leapfrog, for the most current information about palbociclib please see the information on our website in the following link
https://www.bcna.org.au/news/2018/08/new-capped-access-program-for-palbociclib/
We will keep you updated if there are any further developments in 2019.

Leapfrog

Thank you.  I spoke to my oncologist about this last week and he happens to be on the PBAC panel of advisers and he was able to explain the hold up in approval.

Leapfrog

@iserbrown from what my oncologist told me it could take some time. 

Patti J

@Leapfrog. Fortunately my oncologist was also able to get me on to the almost free Palbociclib/Letrozole program. She has just lowered my dose. 

Leapfrog

@Patti J I'm on a Palbociclib trial so I'm given it free, for which I'm eternally grateful. I just feel so sorry for those who have to pay $40,000 before it is capped, unlike us.