Hi @Heth7. confusing wraps it up fairly neatly. As Marg says it will get clearer as you go, but now you need to think about more surgery, what you want to do after that (reconstruction or not) and what your medical advisers suggest re post operative treatment. It's all very variable depending on the precise circumstances of your diagnosis, as is your response to any treatment. I had a mastectomy nearly 5 years ago and, touch wood, hope I will get through my 5 year tests next month with no evidence of disease.
Lots of people here can advise on a whole lot of aspects from their experience - there's precious few rights or wrongs - so feel free to ask, there's no such thing as a silly question. One of the things we will all suggest is stay off Dr Google - a really easy way to scare yourself stupid about something you haven't got and may never get!! Keep a folder as suggested, take someone with you to consultations if you can - it can all be a bit daunting and someone who isn't going through it can be helpful and more focused on getting in\formation that will help you. Many oncologists can give you material in writing on what will happen, what treatment you will have, possible side effects etc. Always remember these are indicative, most people only get some and some people get very few at all. Main thing is that the problem has been diagnosed, you are getting treatment and with luck and determination, you too can lick this. Best wishes.
Hi @Heth7,
It is really tough going in the first couple of weeks. I always recommend you get a folder that you can take to all your appointments--get copies of all your results, the names of your doctors and contact numbers. It's very easy to lose track of who is who and what they have told you.
Things do get a little easier when you start to learn the language and figure out who everybody is and what they are talking about.
I'm sure one of the ladies with better skills than I will pop up a link to the 'My Journey' resources, which may be helpful. If you haven't already connected with a breast care nurse, that is a really good idea too. They are a wealth of knowledge and can help you navigate.
It's all one step forward, two back then hurry up and wait which can be both frustrating and confusing. This is a good place to ask questions when you need advice on specific things. We've all been where you are and know how ratty it can make you feel. Good luck. Marg
