Hi, I am a bit lost on the newer website . I was here with Pagets Disease of the Nipple questions three years ago . I cant seem to get an answer from that area now . I have still got the symptoms at this time and had mammogram , ultra sound and milk duct removal 3 years ago . I couldnt get any GP or specialist to refer me for another opinion as advised . I have just had a visit to the GP clinic this week and the doctor gave me a copy of the letter on my file from the surgeon . It suggests I was "motivated" to have surgery so he removed the ducts as a therapeutic measure . He mentions "motivated" twice and it sounds like I had the all clear but he gave in and did the procedure. Its all lies and misleading , he was the one to suggest the removal and he also states the crusting on the nipple had cleared which it hadnt . I have had the on going symptoms and it has got worse . He also said I had Fibromyalgia which was wrong I actually have a rare auto immune condition called Dermatomyositis which has a high incidence of a tumour associated . I think the GP gave me the letter to show me how I had been portrayed . I had no idea about it , I trusted the surgeon at the time and believed them when they said no need for further opinions . In fact they couldnt get rid of me out of their office quick enough . I am not a surgery seeker I am far from it as I have had so much done in the last 30 years of illness . I am in worst physical condition now then I was back then , I weigh 44kg and to have just found out I was lied about and misled is doing my head in . I have a new referral thanks to this new gp but I now think its a waste of time as I couldnt face radical surgery to remove the nipple or breast , the steps that were pointed out to me the first time . I feel totally betrayed by the medical profession and also found out the letter from the surgeon after he removed the milk ducts has gone missing from my file . How on earth has this happened ? I had bladder and bowel problems and surgery over the 3 years so as I wasnt getting anywhere with the breast problem I had no option but to carry on . To fight chronic disease all these years and to get to this point where I have been lied about is devastating .
