Blog Post
11 Comments
- arpieMember
Thanks Mez_BCNA .... That is absolutely astonishing! How on earth can the various Gov/Health Depts possibly plan for future costings of Specialists, hospital beds, amounts of specialised drugs and all other associated costs - if they don't even know current numbers of all those with Mets, let alone where they are. Grrrr
All they have to do is get all Pathology Depts to send a monthly listing of Newly Diagnosed Stage 4 patients to a central database - that will show where & how many there are .... to enable efficient & proper costings.
- TriMember
Another important step forward- well done to all the advocates and BCNA!
- Mez_BCNACommunity Manager
cranky_granny I have updated your comment with the numbers for you 😉
- cranky_grannyMember
Thanks Mez
- Mez_BCNACommunity Manager
Hey Cath62
What we do know is NSW has shared its methodology with the other states to support them to report on their data.
(I've taken a snippet below from ministerial media release)
By linking cancer incidence and mortality data with NSW clinical datasets, Commonwealth Medicare Benefits Schedule, Pharmaceutical Benefits Schedule and National Death Index data, the Institute was able to determine the number of people living with metastatic breast cancer in NSW.
- cranky_grannyMember
Great news . The total now for the states that have done the sums:
NSW = 7,900
QLD = 3,863
VIC = 4,461
Running total: 16,224
3 down come on Act. WA NT and SA
- Cath62Member
Absolutely great news. Congratulations to all who made it happen. Now this will put pressure on the other states and territories.