minimum67
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Re: Peripheral Neuropathy
Hi,I thought I should give an update On how I m trying to prevent Peripheral neuropathy.Ive just had my 3 of 4thdose dense Paclitaxel and Im lucky that my centre was able to obtain 3 elastogel gloves ( which if you have time I think you can get on ebay ).I bought extra gel packs to freeze to slip in front and back of gloves so I dont have to change them as often as my treatment last for 3 hours. They did not have the socks so I bought cheap oversize slipper booties and but iced gel packs in front and back of these booties .I needed to cut the front to fit the top ice pack in and then from Priceline chemists found ice gel packs that came with a wrap and used that to wrap on the slippers.I was fortunate to have a friend there the whole time and she helped the nurses change the packs.We aimed for every 40 minutes or so.As Im having cold cap for my hair which has worked well and requires an extra hour before and after the infusion I did the same with the ice packs. I get panadol and a benzodiazepine called Loratidine so it is not that uncomfortable.I ended up wearing 2 pairs of thin socks to protect my feet ( one was 2 painful ) and they had special glove inserts for me to wear. I have even fallen asleep for some of the treatment! So far first treatment no symptoms. 2 treatment ( which is eq to 6 cycles of weekly Paclitaxel ) i had very mild tingling in 3 right toe at end of the day for a couple of days in the first week. My right thumb at end of day for about 5 days had mild tingling .THe NUM yesterday realised the glove which is like a mitten if you put the thumb in that section isnt iced so Yesterday I just kept my thumb close to my other fingers.So far this morning nothing. I have also been taking b6 and magnesium. So I am pleased how it is going.2Views2likes0CommentsRe: Who else can't sleep?
Im having chemo and in my 4th round of AC I realliesed the dex was affecting my sleep so I was allowed to have low dose Zyprexa whcih acts as a antinuaeea drug but it is also and antipsychoitc ( I felt I was havin mood swings, tears and rage on dex ) That helped with my sleep as well as Remifem for hot fu=lushes and then last night when I woke at 2:30 I took ativan which they is asedative used for the cold cap but they also said I could take it occasionally as a sleeper ...so last night I got about 9 hours...Horray hope these ideas might help others.2Views2likes0Comments
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