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bronmeg1
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Joined 11 years ago
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Re: Faslodex/Fulvestrant
Hi @lesleyb, I was started on Fulvestrant today & as far as I know I have it on compassionate grounds. I admit today was a blur as I was told my latest scans showed that the current meds were no longer controlling my lung mets & Fulvestrant is the next course before chemo. As I live in a rural area, they were unsure if it was available straight away, but was, so was given the injections. As it requires a loading dose, I will be back in a fortnight, so will have a better idea of costs. I'm not looking forward to the side effects, the same as other hormone treatments. Good luck. Cancer is such an expensive disease!!Re: Olaparib / PARP inhibitor
Hi @scientist, know it's been a while, can I ask again how you are going on the Olaparib? I've been on it for 16 & half months & my latest scan showed it has stopped being effective. Apparently 12mths is good going with the drug (something you don't get told or ask when you go on it!), so we are doing well. So today after being given this bombshell, I've been started on another drug, injections this time, last resort before chemo. Can I say shit!!!! Please let me know how you are goingRe: Olaparib / PARP inhibitor
Hi @scientist, I've been on it about 8-9mths. Initially was a little rough as it made me a little nauseated which I managed with ginger tablets, but that settled. Now it is just juggling it around food, especially if going out. Yes, all going ok for me too, though the last scan showed a little growth of the lung cancer but hasn't controlled the bone cancer so have had radiation for that. My oncologist has hopes too. Where are you located as I think I am the only person on it in far north Queensland, so have no comparisons? Glad you are going well & hope it continues for youRe: Travel insurance after Lumpectomy
Has anyone gotten travel insurance for metastatic breast cancer recently? I've done the online search with covermore & no luck. I went overseas a couple of years ago & used another insurance company after declaring my met disease (lungs), but now have bone cancer too, so need someone who will not only cover cancellation if tests come back negative (for me :( ) but also if a fall causes a fracture. All suggestions welcome.26Views0likes0CommentsRe: Are you a breast cancer survivor who happens to be childless?
Hi @"Janet A", just reading your posts. I too am childless a bit by choice, timing & finding the right partner to have them with. I've been to several seminars & never felt separate because of being childless, but have felt isolated because I have no 'significant other'. I am 10yrs since initial diagnosis of stage 4 bc & am 18mths since diagnosis of metastatic lung cancer & 6mths since bone cancer diagnosis. My cancer is genetic (BRCA 2) & most women in my family have been diagnosed with breast cancer & all except for me, have produced multiple babies & breastfed. When I was first diagnosed, the 'chatter' then, was breast cancer could be related to early periods (11yrs or younger) and the use of the contraceptive pill. All research helps, keep up the good work10Views2likes0CommentsRe: Alaparib
I wish I was as lucky as you, though so far have kept my hair. I am on day 5 & the last couple of days have been less than desirable, with muscle weakness, vomiting & nausea, limited energy & fatigue, no appetite & change in taste buds. Even developed a side effect not on the list - vaginal spotting, which stopped while taking Tamoxifen 9yrs ago. I pretty much sailed through chemo & radiotherapy, so suppose had to catch up at sometime. I am hoping that as I get used to it, the symptoms will reduce.Thank you for giving me hope that things may improve
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.
